Thursday, January 29, 2009
Letter to dad...
A Letter to my Dad
By Jim Sida 01-28-2009
Dear Dad:
I wanted to write you this letter to get your take on what I might describe as a cloud hovering over our nation, a very dark cloud I might add.
As you know Barack Obama has been elected as our 44th President and he has taken over as the leader of our country in very difficult times.
While I am very sure that our former President, George W. Bush would rather have had greater success, I’m afraid that he left quite a mess.
With wars being waged on two fronts, the global fight against terrorism and a world economy in chaos, I can’t say that I would want to be in President Obama’s shoes.
Quite frankly, I pray for him and for his success for many reasons, but Dad, this is why I’m writing.
You see there is this radio talk show host who publicly said that he hoped that President Obama fails in his quest as our leader.
I know that you’re going to tell me not to worry about this guy, and yes I remember your trademark saying, “Life is too short to be little”.
I get the positive nature of your philosophy, but here’s the problem Dad, I was watching the news and they reported that American companies laid off 73,000 workers today because of the economic doldrums that we find ourselves in.
The announcer said it was the largest one-day mass layoff of workers in modern U.S. history.
This comes on the heels of the recent lay-off of about 350 workers here in Mesquite and that’s a lot of people out of work for a little town like ours.
Let me get back to this Limbaugh guy.
When I first heard that he uttered that he wanted President Obama to fail, I chalked it up to one of his bombastic, off the cuff comments.
Boy was I ever surprised when I listened to his comment and discovered that he said it in all seriousness and with a straight face; clearly not with tongue in cheek.
So here is my question to you Dad – Why do you think that Limbaugh would want our President to fail?
Doesn’t he care about all of the good hard working Americans that will suffer if President Obama fails?
Maybe it’s because he’s a multi-millionaire that he doesn’t care what happens to the rest of us?
I just don’t get it Dad, maybe the reason Limbaugh’s obscene comment strikes me so hard is because I remember you telling me of your life during the Great Depression and living in the dustbowl plains of Oklahoma.
I remember that you told me that starvation stalked your family during those hard times and that there were many occasions that you literally had nothing to eat.
I remember you telling me of a reoccurring nightmare you had, in which you and your family were starving to death.
I was touched when you told me that after one of these bad dreams that you forced yourself to imagine riding your horse across the rolling hills of Oklahoma in order for you to ward of the memory of the nightmare and go back to sleep.
Did anyone back then say that they wanted President Roosevelt to fail?
I don’t know Dad, maybe it’s because we’ve lived in such affluence for so long that people just can’t imagine that kind of suffering in America today.
I have to tell you, I sure hope they are right by God, because you see, 73,000 good Americans lost their jobs today and it frightens me.
Listen Dad, don’t worry about me as we’ve saved and think that we’ll be able to ride out this storm, but I can’t help but worry about all of the folks who will probably be laid off tomorrow.
I can’t help but worry for those 73,000 souls who woke up this morning only to find out that their lives have been inexorably changed—they are now unemployed.
I especially worry for our neighbors here in Mesquite that are now out of work.
I worry for these families and for their children.
So you see Dad, I am desperately praying for President Obama’s success.
It makes sense doesn’t it Dad, that his success will be collectively all of our success?
Anyway Dad, I’ll quit gabbing and just ask you straight out.
What do you think that we ought to do about this Limbaugh fellow?
I know that you are a wise man and I know that you’ll have the right advice for me regarding this matter.
Dear Son:
You know the First Amendment of our Constitution gives this Limbaugh guy the right to say what he wants, no matter how ridiculous and abhorrent his views are.
Ultimately, I have to think that the vast majority of Americans who listen to his show will utterly reject his silly nonsense.
Additionally, I know that you live in a community with a large population of retired persons.
My guess is that while they aren’t as old as me, I’ll just bet that like you, they remember the Great Depression either through personal experience or through family lore, so I can’t imagine that they would agree with this Limbaugh fellow.
What you tell me is troubling indeed so I do have some advice that might be able to help you and others deal with this nutty broadcaster.
Here is what I think that you must do.
It’s important that you do exactly as I tell you.
You must follow my instructions unfailingly and with great resolve.
Hear me now, the next time you are driving in your car and Mr. Limbaugh comes on the radio, just take a deep breath, then take your right hand off of the drivers’ wheel and calmly move your right hand in the direction of the radio—then turn it off!
As a postscript to this letter and as a matter of full disclosure, my father passed away in 1977. I wish he were here today as I’m sure that he would have given me this advice.
So in honor of his memory I will do just as he would have wanted—turn Rush Limbaugh off.
Third round sutent...
He's been hurting more last few days too and if I remember right he said the same thing last month right before he went back on the "sutent"...decided yesterday to take naproxen in between lortab and it made a difference to him and wasn't hurting as bad...I still think he is over doing it but only he knows how he feels...he doesn't always express it to me so I ask cause I watch his body language and listen to (whether he realizes it or not) sounds coming from him...
Tam got him a journal asking for information, etc for Christmas....he's been writing in it more and more...another concern is he's talking in his sleep again and this isn't brought on by morphine as he's off that stuff...naproxen is just an anti-imflammatory medicine like for arthritis...as he has that too...last three days I have to re-explain what I just said like he's not understanding what I said so I have to tell him again...I'm hoping its just cause he is worried about finances since we are still waiting to hear from workmans comp on his broken arm and short term disability through work since workmans comp stopped checks on Dec 16, 2008 pending doctors evaulation and it's not the cancer spreading...so it makes me wonder....maybe I'm reading more into it...yep....
Kids got hit with the ice storm and no school...hope they are staying warm and cozy indoors...still wonder bout them...wishin' they lived closer...
I thought my music playlist had some tear jerk songs on it but...Hunter's blog has music that makes me tear up...please continue prayers for that young man...the doctors had to induce his coma state again...just click his name to read his blog and status...
Not sure what is better...going HOME quickly or slowly watch your loved ones go HOME...like with cancer...always wondering do I leave them alone for awhile to do things...not wanting to be away for very long...you don't want to loose any precious time with them...even if you don't do much or talk all the time...their presents is all you really need and love...
Anyway, the doctors office called yesterday and he is scheduled for the CT abdomen/pelvis on Thursday Feb 26th and whole body bone scan on Friday Feb 27th...labs need to be drawn on Tuesday Feb 24th...before tests but also for doctor to see how he's doing as well through the blood work...then see doctor on Wednesday, March 4th to know if the "Sutent" has slowed the cells down or stopped them (put him in remission)...hopefully it has so he's got that extra time...I'd like to see him beat the odds like Patrick Swayze's cancer...not just couple of months but lasted a year and he's still fighting and hoping for another year...I too would like to see that for Tim...
Hoping elf...eryone is doing good weatherwise if not otherwise...much luv to all...have a good day! :D
MySpace Blessings Comments
Monday, January 26, 2009
Sleeping...
We got there late and the services were still going on and I waited...I kept fighting back the tears cause I don't want to be going through this down the road maybe when we're both older but not now...I found the love of my life and I'm not ready to let him go yet...so, I'm praying God will allow him to be here for as long as possible...he offered for Tyke to come by or call if he needed someone to talk with as Tim as been through it with his first wife Pam dying in a single car roll over accident...
After the services, we headed for the post office and got the mail and came home and he immediately laid down...it's been two hours and he's still sleeping...I still feel he over does it being on that leg...I'm just glad the weather was nice and didn't rain on everyone...right now the weather looks awful...like we're going to get more rain...
We are being patient as parents as much as possible...we worry about both our girls...so sometimes we make the first call or even text...see how they are doing!!!!
Also, still waiting on workman's comp finalization of claim which we have 3 more weeks to go to find out and also short term disability through work hasn't come through yet...it's been three weeks...he said he'll make calls next week to give it the rest of the week (through my prompting to wait)...
Unless something else comes up this should be the last posting for a few days to a week...elf...veryone be safe and enjoy your week....lata <3
Sadness...
He got back and then we went to see his ma and she is doing well...came home and had lunch in time for him to go to coffee again and I took a nap...was really tired...I woke up feeling like he was over doing it today and worried about him with the way the weather was changing but he got home and said he was fine and wanted to get ready to go to a friend's viewing...pay his respects to Tyk and Barbara and all he knew...I dropped him off at door and Barb took him in and I wasn't up to par to go in so I sat in van off side of premises watching everyone...
It all came flooding back to me when we got the news on Tim and how he was feeling and how we both thought he was on his death bed too soon til we got him off the morphine and saw how with the improvement he's doing getting around again like his old self minus the arm/leg problem...crying less and letting my guard up and letting it slip to the back of my mind that all is okay...ha...sitting there watching everyone...I realized that's going to be me one of these days!!! I'm not sure I'm going to be able to do it...I text Tam and she immediately called me...I explained who had passed away and seeing everyone and how that's going to happen one day...I just cried...so it's fresh in my mind again...I do hope this medicine has slowed down the cancer growth and he goes into remission and he's got that extra time with us...as there is no cure for kidney cancer yet...mRCC...so I will pray and hope that extra time is coming...
Hope all is well with everyone else and have a good week to all and one more thing...pray for Hunter Thurston who has swelling on the brain from an accident...you can read the family blog on www.hunterthurston1.blogspot.com
Be safe and good night...
Brother n law...
I called him back and he was at the Arizona mile marker 36...I figured he'd be here pretty quik...gave him about half hour as I was talking with Tim and then I headed over to meet him at Oasis truck parking to pick him up...

Doug is good and looks like he has lost some weight...we chatted and he was really glad to see how well Tim is doing...(up until he saw the doctor on Dec 4 before starting his second round of "Sutent" he was....struggling to get around, eat, sleep, drink...I always had a "babysitter" for him when I had to go somewhere or my doctor appointments...I really thought he was on his death bed...until doctor realized that with the morphine patch it wasn't helping and making him worse and Tim went cold turkey off the morphine pills as well for couple of days and tried again...it started all over again...so doctor said even the morphine pills were poisoning his body to get him off it right away and go back to the lortabs)...
His doctor appointment this past Thursday, doc wanted him to get some physical therapy...he said no, he'd do what he could at home and that's why he's getting around more on the cane and building back up his muscle strength...but he is doing all this with the cane...his left fractured arm-he still doesn't have much mobility to it and we are assuming the fracture is healed???...I still worry he is over doing it...when he lays down to rest most the time he zonks out...sleep...:D
So with this said Doug and Sharon have offered help whenever and wherever we need them but like with everyone who has offered help...we appreciate it and am keeping everyone in mind and I will make those calls when the time comes...it means a lot to us...
We got a few pics (he is going to email me the ones he took) before taking him back to his truck and heading out for California then drop off that load get another one and head to Texas and switch trailers with another driver and head back to Phoenix and hope he has another load to pick up there...be safe and take care...
Thursday, January 22, 2009
Follow up...
The tests should be scheduled for end of February to get results back to the doctor and then see him end of the first week of March to know whether he continues the sutent or stops before going to something else...also, alot will depend on whether his work will allow him to apply for long term disability after short term ends at end of March...at least hopefully until social security comes through...because when the insurance goes over to cobra...for him alone-it will cost $498 a month, for both of us $1104.00...yeah, ouch!!!!! He says depending how everything comes out if not the way he hopes for then he will drop everything and just wait...it's not what he wants to do but there's no way anyone can afford cobra insurance...no wonder a lot of people don't pick up insurance or even see doctors unless they really need to....which is about what I'm ready to do...only as needed.....!!! even with the insurance right now....
That's why it seems disappointing when you follow the rules and try to do everything that is needed and then it's always a waiting game and so much RED tape...and you feel like you keep getting doors slapped in your face...how do people keep up their optimism??? Oh well, just keep trying to go with the flow and HOPE, PRAY and have FAITH it all works out...
Not much else to tell....have gr8t wkend and a TGIF!!!!!!!!!! Be safe and take care...gOoD nIgHt 8D
Tuesday, January 20, 2009
Workman's Comp...
He'll be probably sleeping most of tomorrow and staying off that leg as much as possible till Thursday morning for oncologist appointment...but I convinced him that it's too much walking at Dixie...so he agreed to use wheel chair...
Anyway, the workman's comp doctor said with him writing up his reports and sending them to the insurance and the insurance doing their processing it will probably be as long as a month before we get a determination letter from workman's comp...more waiting....ughhhh...that's the hardest part especially for him...I have to keep telling him...lol...to be patient...I don't really have much time...don't know when...well, let's hope that when you get your next bone scan in early March it'll show that the cancer has slowed down and given you more time....
Yes, even though he over did it today...he still had a friend pick him up and go to coffee with the guys...I just hope he doesn't pick up any flu bug or cold...not sure how it would affect him with his immune systems compromised with the cancer...that's why the doctors have said to just cut back on his smoking and not quit...his body is fighting too much right now with the cancer...
Today is/was a big Day for the Nation...let's pray and hope for new changes and a better ecomony....take care and good night...BE SAFE!!!!
Thursday, January 15, 2009
Weekly Update...

Hi...me and my sister Robin peeking through the window to see everyone...lol...here's the weekly update....he's been on "coreg" for a week now and his blood sugars are stable as long as he watches what he eats...I test him once a day but do several at fasting in the morning and then did a few tests before breakfast and did the same for lunch and dinner....so "Coreg" hasn't brought his blood sugars up any higher...so far everything looking good. His blood pressure is better but his pulse still is a bit high like in upper 90's and l01-102...so we will try two a day and see how that goes...see if the rapid pulse rate won't come down a bit more....
He's been a bit bored and wanting to get out and restless not sure what to do as he has a tendency to over do things...it usually sets him back a few days to rest up when he's over exerted himself...like Tuesday he wanted cleaned up and showered, walking by using his cane more and then to call a friend to have him come by and get him for coffee...walking more with the cane...walking out into the back yard with the cane...by the time he got back from coffee he was ready for a nap...slept most of yesterday too..
He's done with the second round of "Sutent" for the cancer and he'll be off it for 14 days and start again on the 29Th if the doctor says to continue when he sees the doctor on the 22Nd...he's feeling more discomfort with his right arm that's not broken...he's anxious to call s.s. but I told don't bother as it's too early for any results yet...be patient...
We look for any news about Patrick Swayze on his condition...he went into the hospital Friday, Jan 9, 2009 morning last week with pneumonia and he's improving but not much else. Our prayers are with him and that he continues to fight as he said in the 20/20 Special last week....
Ohhhhhhhhhh, the weather has been so nice...being able to open the front and back doors...until I see he's covering up with a blanket and then I close the doors...don't want him getting chilled and then come down sick...my sister has been sunbathing last couple days and is showing tan lines....plus bike riding...
I don't know of any other news to tell you until next week after the doctors appointments on Tuesday (job related) and then Thursday (cancer related)...if anything comes up I will post it...
Elf...eryone enjoy their weekend coming up, be safe and don't take life for granted!
Much luv to all...good night :D
Thursday, January 8, 2009
New medicine...
A new medicine was added today for him on his elevated blood pressure/rapid pulses...he's to take one Coreg daily and if the rapid pulses don't decline he's to take two a day...any wheezing involved stop but he's to go back in two weeks to see how he is doing...leaflet info said possible side effects were raised blood sugars...ouch, just what we don't need...
The doctor also took blood work for an A1C...it's a blood test for his blood sugars and somehow it gets a three month average reading...if it's under 7% the doctor won't be too worried as that is a good average but to still watch what he eats...if it's higher the doctor will put him on a diabetic med...
The bone doctor told workman's comp that his broken arm (in normal circumstances would have been healed by 12/16/08 the cut off date of his last check) That's why the evaluation appointment to determine the closing of the case...but, we also found out that the short term disability will kick in but the turn around time for a check to start coming would be about two weeks and the short term disability at work would not start from when short term disability started but when his accident was on 9-25-08 so the six months for the short term disability would be over at the end of March lets say not in July...So we are hoping that social security disability is approved before all this happens so there is a check coming in and still be on the health insurance what is called cobra (we pay more out of our pockets for the premiums)...so we are still playing the waiting game....hopefully, we won't have to go the next step and start long term disability.
Our youngest Tam, came home this afternoon to get things ready and packed to go back to college on Monday but has to check in on Sunday. With a new Henderson library branch opening this Saturday and her going back to college-her schedule will be hectic and she'll be working every other Saturday at the new Galleria Mall Library...so we will probably see less of her....
My sister Robin made it in last night around midnight from Phoenix and we are happ:D to see her...she will be busy as usual with work when she gets back as she has new training starting...haven't seen her in a few years...she is looking good.
Tim and I watched the "Barbara Walters Special-Patrick Swayze The Truth"...he has terminal pancreatic cancer and a lot of similarities as Tim...what Patrick and his wife Lisa were saying is how and what we have pretty much been saying and feeling...I feel it is a must see if you have a chance when its on air again or if you can see it online somehow, somewhere....a very heart warming and touching story...I do hope his new season premiere of "The Beast" on A&E is good and he's able to do a second season of filming...Patrick has beaten the odds of a few months to a year so far...he's hoping for another year...I pray Tim has that same outcome of beating the odds!
I pray this finds elf...eryone doing well and so far enjoying their New Year! Good night and sweet dreams....<3
Tuesday, January 6, 2009
Appointment...
His other appointment got bumped up to Jan 20th for the re-evaluation on his left fractured arm through workmens comp...so that's a whole month without a check coming in...we have a call put into the insurance to see if that can be changed as far as getting another check or two until the appointment since it has been moved to a later date.
We went for a short drive and checked the mail this afternoon (he stayed in the van)and by the time we got home and back into his wheelchair...he said he was wore out...he was saying on the way home that maybe he could go to coffee and visit with the guys but not sure what he would drink since coffee upsets his stomach...I don't think he would last that long not after the trip to the post office and back...
The ramp is really nice...on sunn:D days he can go out the front door pretty much on his own and wheel out into the driveway and sit in the sun and visit with Maria if she is out...lol...he even wheeled over to the street mailbox and checked it for junk mail, etc to empty out this morning...I have to admit I kind of kept an eye out for him...he already said he wouldn't take the wheelchair all the way down to the post office...no way!
I did a bit of laundry and even washed Jack's bed cover...omg...when I took that off he had sooooooooooooooo much hair that got through the fabric onto the foam bed cushion...I had to vacuum it like crazy....then after I put the cover back on he didn't want to get out of it and lay down with me like he usually does when I lay down to rest or watch TV...lol...he's so funn:D...
Not much else to say and wish elf...eryone a good week and will keep you posted...much luv to all and good night :]
Friday, January 2, 2009
Released....


The pics aren't the best but gives you an idea...wound was bigger than that
and it looks red cause the bandaid I took off...kind of looks like a sunburst
on how it healed...these pics don't show it well...if you click on either pics it'll make it bigger and it'll show it better...it really isn't as bad as it looks...honest :D
p.s. any pic on left side of blog can be clicked on to view bigger and also has a caption when you do...
I have been cancelling my wound clinic appts after going Dec 19th as I have been too tired or the weather...I finally went back today to hopefully get RELEASED...I walks in and the waiting room is full with patients...ughhhhhhhhhhhh....an hour behind...overbooked and short staffed....no problem I was sure I was going to be RELEASED....to make it easier on them I showed Phyllis and she said hang on a minute and we'll see if we can get you released in a second...whoo hoo....shucks...NOT...the doctor needs a pic before releasing....so I wait and just before I goes in I see two doctors leave back door and found out after going in they were headed for surgery...I'd have to come back Monday and see the other doctor to be released, ahhhhhhhh...I'll wait til Friday Jan 9th on my next appt...Steven was teasing me...the head nurse was able to YES!!!!!!!!!!!!!!!! RELEASE ME!!!!!!!!!!! Again, I will have to say the wound clinic personnel are ALL wonderful people and I will miss them especially Mandi...I took to her right off...bestest bed side manner and very warm hearted person....
I do suggest to anyone who has an open wound that isn't healing to have your doctor refer you there at DRMC old hospital wound clinic...they are really good...you can mention my name...they may not remember me after time but Mandi even worked with Tom Price,C-PA...if anyone remembers him...
Well, his blood pressures are coming down and his blood sugars but I am going to have to keep track of his vitals...and what he eats...the Sutent is affecting them unless his blood work comes back with anything too high or low...I will be calling docs on Monday to see if family doc or oncologist wants to handle definitely diagnosing him borderline diabetic, etc...and get RX for blood sugar strips so my strips aren't getting used up with me on insulin, the pills and diet quit working for me...
We feel really blessed to have this time together...even with our moments like this morning when he hugged me and I fell apart and started crying and he apologized for making me cry and I said it's not his fault...it's in those tender moments I can't hold it back...
There are times we both feels our days run into others and we need to check the calendar to see for sure which day it is...or me in another world seems like cause I'm trying to make sure everything gets done...I told him he's going to have to remind at times if I forget to do something cause I'm trying to get things done....like hon, "I need fresh water" which reminds me...oooops...I got to do it now whilest I'm thinkin' bout it...lol...I haven't done it yet...brb....okay, I'm back to which he reminded me I said I was going to the grocery store even at 8pm tonight...I think I will after I finish this...it will be easier than trying to get up in the morning and then not get out of here til late morning...booooooo...I like shopping when not crowded or noisy....
Well, kids will be going back to skool on Monday as well as our younget back to UNLV on the 12th....so we'll hardly see her especially if her job has her working five days plus some Saturdays....Tam and Shaun have set a date for 10/10/10 to get married...time to finish college and get her teaching job and for them to save for the wedding...
If I going to get shopping done guess better go for now and keep ya posted...much luv to all...be safe!!!
Thursday, January 1, 2009
High...




Well, his blood pressures are still bit high...I decided to do every bodies blood sugars this morning cause of the passion fruit smoothies Tam made and the mini chocolate chip pancakes I made...yeah, yummmmmmm.....Tam (124) is okay and my (183)was okay cause I take insulin and no I didn't drink the smoothie that would have really sent me through the roof even with the insulin...and his whooooooooooooooooooooooooooa HIGHER than mine.....247....YEAH now I can see why his blood pressures are HIGH...okay now for some changes drastic....guess time to go back to my green smoothie and try to get him to drink it....and more protein....lean....I can see why he's been feeling hungry and sleeping alot too....I thought it was just the pain meds...
Oh, by the way HAPP:D NEW YEAR Elf...eryone!!!!!! tehe tehe....
We saw the New Year in by watching "Dick Clark's New Year Rock'n Eve" and channel 3 news NBC Vegas....and I'm disappointed they changed the height of where they shoot off the fireworks...300 feet lower instead off the tall casinos...and it SUCKED!!!!!!! It's not the same.....boooooooooooooooooooooooooooooooo ;(
Today, cool sunn:D and b e a u t i f u l .....ful of H O P E ....and I need prayers for my mom....health issues and needs a new caretaker....I wish I was there to help her too....luv u mom...prayers for Charlene and her family...prayers for Cheri Jean and her family...prayers for Sandra/Jeffrey and family...prayers for Maria/Efraim and family...
Better go and elf...eryone be safe today and in the New Year!!!!!!!!!!!!! Much luv to all...
Tuesday, December 30, 2008
Close...
We were totally surprised when he got sick last night and not sure what brought it on but doing good today...He slept better last night for a change closer to four hours instead of waking every few hours all night...and he hasn't been able to stand on his right leg much today as it has really been bothering him along with both his shoulders...
I got up this morning and he was trying to figure out the laptop and play the music and play solitaire but couldn't figure how and where to go...so he was playing mahjong's and he said he was having a hard time figuring how to play it...some of the tiles wouldn't move so he gave up...I showed him some stuff on the laptop when I got up...I told him I liked playing spider solitaire and jewel quest...
Well, the ramp is still green and we are still covering it up for a few more days...looks nice, blends right in with what is already there...
His workman's comp check was a few days late and when he opened...it was short...so I put a call into the insurance office and they called back with the explanation of the 16Th was the last day for a check until he's re-evaluated on January 8Th by a state workman's comp doctor for his broken arm to determine if the case is to remain open or close it...so in the mean time, no income coming in until ????...so, until workman's comp makes a determination he can't have work start his short term disability...hope this doesn't take too long...we figured he'd continue to get a check every two weeks until they made a determination after seeing the doctor...the appointment is in Vegas so I hope he can make that long trip...Georgetown is bad enough...it really wears him out and to sit that long hurts his hip/leg...
Well, I guess that's all the updates and I'll close til next year...much luv to everyone and be safe...:D
Saturday, December 27, 2008
New Ramp...

A new concrete ramp...a friend of his and some other guys came over this morning and started laying concrete after they staked out the fiber board forms....took about three hours but due to wet they had to skred the concrete to help it settle before covering for the night and for sure the next four to five nights...my understanding it'll help keep its own heat while curing and in three days take off the forms and he says the third day it the most important...don't understand it all but learning...he used to work in a concrete business...it looks nice with the curve in the sidewalk...will post pic in few days...
I had to laugh...I said now maybe he can get out more and we can go for drive often to get him out on short trips so he doesn't get wore out...ha...someone popped off...lol...said he could drive his chair over to street mailbox and check the mail...I didn't think about that one!!!!
He was feeling a bit off yesterday afternoon/evening...not sure why...he might have over done it by being on his leg too much...see he's been trying to use his cane or crutch to help keep the muscle strength up as much as possible...or then again it's going into the second week of second round of the "Sutent" medicine...been keeping track of his vitals off and on...okay but BP's a little high...but no headaches, dizziness or anything...still bit off today but slept alot too in between the guys here for the ramp...he's doing better tonight...his appetite doing pretty good...he was hungry for my taco soup...so I made it and it hit the spot for him...yummmmm
ok, so here it is if anyone wants it:
TACO SOUP...
1-pound hamburger browned & drained
1-sweet onion chopped browned
add and mix all together after above 2 items...
1-can yellow corn
1-can pinto beans
1-can red kidney beans
1-can black beans
1-can hominy yellow or white or both
1-can navy beans
1-can diced tomatoes (optional)
Juice and all from cans....
1-pk taco seasoning mix
1-pk Hidden Valley Ranch the original salad and seasoning mix
1-bottle tomato juice(I use half the day I fix and then on 2nd day
add more sometimes to thin down...to taste for thick or thin
consistancy...
and simmer on low for 1-2 hours...serve with
shredded cheese/diced onions on top, tortilla chips or in bread bowls,
crackers, etc....I've given the recipe to my son-in-law and he puts his
own variation/twist to it...!!!!
As I had the slight fever 99.1 which I've been known to have over the years with the sarcoidosis...a bit off and on too...then I pulled the muscle in leg/hip area when shifting body on couch last night...(I was concerned on how he was feeling)...ouchhhh that it hurt....finally, after an hour I went into bed at 1 a.m. and zonked right out...I have been careful all day and used my cane so it wouldn't affect my knee...feeling pretty good tonight just slight tenderness in area...
Well, not much else...everyone take care and enjoy your weekend...night 8]
Thursday, December 25, 2008
Spruced up for Christmas...

He got spruced up this morning for Christmas...I clipped his hair all off as it was getting too long and he shaved...showered and he felt better but wore himself out...he has that baby soft face when he's shaved...love it :D...He had made a comment that he thought the sutent was working and that he would show me after getting cleaned up...
He has this spot on the top of his hand probably about the size of a nickle now (looks like a brown spot or maybe what looks like could be skin cancer)
and he says it was bigger than that before starting the sutent...I had seen it but hadn't realized it was getting smaller...what brought it up was I noticed he had a mole looking spot that was broke open like maybe he clipped it while cutting his hair and he said he hadn't...plus we got him weighed to see if he had lost any more weight since at the doctors October 30th...he has dropped down another 20 pounds...at the start he was 189 back on October 4th...he's down to 163 pounds...
I ran some errands soon afterwards and when I got back I had missed his brother and wife...and our neighbor had stopped in with a flan...she is really a good cook/baker...it is delicious...
I got busy doing other things as well while he napped...banana chipper cookies, peppermint chocolate chex party mix...really good...made a "Killer Kaluha Dbl Chocolate Bundt cake" for the neighbor...made potato salad for the Christmas dinner that will go with the ham...rolls, baked beans, cranberry celebration salad, pumpkin pie....uhhhmmmm....there will be five of us for dinner...
Just relaxing after getting all of it done and playing card game and listening to music while waiting for everyone to sack out...pulled out a couple presents that have been hidden...
Again, apologies if no one understands what I am writing but I write what thoughts come to mind and when I re-read it makes since to me...
I hope everyone is enjoying their Christmas.....God Bless You All on this B E A U T I F U L Day....good night....
Tuesday, December 23, 2008
Asking of Prayers...
He says he not feeling too hot today, took a loritab that had extra tylenol in it but still off today...he has eaten good and plenty of fluids as well...just gots to be the sutent...he said he felt pretty good on those two weeks when he was off of the sutent...but knows he needs to give it a chance to work...
Well, depending on the weather we may wait til Monday to get his labs done...I may cancel my wound clinic appt for Friday as snow due up around Georgetown...we'll see...
Oh, by the way from yesterday to today after changing the dressing, the opening is the size of a q-tip end...whoo hoo...maybe I'll be let got Friday if I go then....:D
Wow Christmas almost here...May all yours Christmases be BRIGHT...much luv to all...
Sunday, December 21, 2008
Power out...
Finally, close to 2 a.m. the power came back on and I finally got up and shut off the Christmas tree and took extra cover off him so he wouldnt wake up too hot...but stayed on the love seat rest of night...not sure how power was going to be...lol...
He started back on the "Sutent" Thursday and he can tell as it's leaving a nasty taste in his mouth again...and a bit constipated but we're working on it to make sure he stays regular like doctor says...I pretty much fix what sounds good to him or what he thinks he can eat...I fixed hamburger patty, mashed tators and coleslaw the other night and it hit the spot with him...fixed him cinnamon bread french toast this morning...no leftovers I think the kids finished it off after him and I laid down to take a nap this morning after breakfast...
Back over Thanksgiving, I told you our oldest Charli and I went Christmas shopping for a neighbor family...well, Secret Santa delivered tonight....tehe tehe tehe...waited close by to see what might be said....ahhhhhhhhh, it was so cute...one of the younger girls opened the door and said there were presents and you could tell she was taking them in and the mother was saying something to the lit'l one and the door was closed...but a few minutes later the lit'l one came back out and said something and I asked Shaun what she said cause he was laughing a bit...she said, "Thank you SANTA, Thank you Santa". That was so cute...Hoping this will make there Christmas a little brighter since their daddy away getting medical help...and mommy only worker...family member renting room from her...well, ummmmmmmmm wonder if any more "pay it forwards" can be done...
The "Piano" song is playing again....still makes me feel like I'm dancing around the room with Tim...
He gets more blood work on Wednesday but it's only once a month now unless doctor changes his mind with a phone call to us...sounds like he's antsy tonight...and cold so kicked up the heater one degree...and with Christmas just a few days away...I wish EVERYONE the Best of CHRISTMAS'S ever with Family and Friends...much luv to you all...
Saturday, December 20, 2008
Tuesday, December 16, 2008
I know...
We have learned to keep his bowels going daily or it throws his body off in that he isn't hungry or feels not like eating much. We are learning a lot of different things with this cancer. Making sure he gets plenty of liquids especially water so his kidneys aren't overworking since that is where the cancer started from.
When he's not sleeping, he tries to occupy himself with TV but there really hasn't been much on to watch...and I get movies from the library but nothing interest him...tried books-no, games-no...word puzzles-no...
We do have a friend/s who are going to put in a legal concrete wheelchair ramp so we can get him in and out easier to take maybe a ride to just get out (as we were talking this morn').
Due to the weather we are having, I cancelled my wound clinic appointment today. I didn't feel like traveling on these roads in this wet, cool weather...suppose to be getting some more...I will go to my appointment on Friday...it is down to once a week but this week will be week and a half...I have been changing the dressing daily and it's looking good and smaller...
I got laundry done yesterday but after trying to get him in the shower and cleaned up and fed I had not much energy left to try run the vacuum through the house...maybe today...
Our neighbor has been a sweetheart and couple times a week she has brought some food dish over for us...once it was tamales...those were sooooooooooo good.....then she brought over chicken burritos and they were good too....and jello and then sunday what I thought was vegetable soup until I got to looking and ohhhhhhhhh my it had big pieces of fantail shrimp...so I would say fish chowder...it was sooooooooo good I had to share with ma (mother-in-law)...he doesn't like fish unless it's salmon filet or salmon cakes the way I fix...or tehe...gorton's fish stix and then they can't be fishy smell or soft...which sometimes they can be....I keep telling her she doesn't need to do this...
Okay I need to go and get my breakfast and shwr and etc today....I hope you all like the Christmas Pageant ...a friend sent that by email and I had to share....enjoy your dAY eVERYONE!!!!!!!
The Christmas Pageant...
My husband and I had been happily
Married (most of the time)
For five years
But hadn't been blessed with a baby.
I decided to do some serious
Praying and promised God
That if he would give us a
Child,
I would be a perfect mother,
Love it with all my heart
And raise it with His word
As my guide.
God answered my prayers
And blessed us with a son.
The next year God blessed us
With another son.
The following year,
He blessed us with
Yet another son.
The year after that we
Were blessed with a daughter.
My husband thought we'd
Been blessed right into poverty.
We now had four children,
And the oldest was only
Four years old.
I learned never to ask God
For anything unless I meant it.
As a minister once told me,"If you pray for rain,
Make sure you carry an umbrella."
I began read ing a few verses
Of the Bible to the children
Each day as they lay in their cribs.
I was off to a good start.
God had entrusted me
With four children and
I didn't want to disappoint Him.
I tried to be patient the day
The children smashed
Two dozen eggs on
The kitchen floor searching
For baby chicks.
I tried to be understanding...
When they started a hotel for
Homeless frogs in the spare bedroom,
although it took me nearly two hours
To catch all twenty-three frogs.
When my daughter poured
Ketchup all over herself and
Rolled up in a blanket to see
How it felt to be a hot dog,
I tried to see the humor
Rather than the mess.
In spite of changing over
Twenty-five thousand diapers,
Never eating a hot meal
And never sleeping for more
Than thirty minutes at a time,I still thank
God daily for my children.
While I couldn't keep my promise
To be a perfect mother -
I didn't even come close...
I did keep my promise
To raise them in the Word of God.& nbsp;
I knew I was missing the mark
Just a little when I told
My daughter we were going
To church to worship God,
And she wanted to bring
A bar of soap along to
"wash up" Jesus, too.
Something was lost
In the translation when
I explained that
God gave us everlasting life,
And my son thought it was
Generous of God to give
Us his "last wife."
My proudest moment came
During the children's
Christmas pageant.
My daughter was playing Mary,
Two of my sons were shepherds
And my youngest son was a wise man.
This was their moment to shine.
My five-year-old shepherd
Had practiced his line,
"We found the babe wrapped
In swaddling clothes."
But he was nervous and said,
"The baby was wrapped
In wrinkled clothes."
My four-year-old "Mary" said,
"That's not 'wrinkled clothes,' silly.
That's dirty, rotten clothes."
A wrestling match broke out
Between Mary and the shepherd
And was stopped by an angel,
Who bent her halo and lost Her left wing.
I slouched a little lower
In my seat when Mary
Dropped the doll representing
Baby Jesus, and it bounced
Down the aisle crying,
"Mama-mama."
Mary grabbed the doll,
Wrapped it back up
And held it tightly as
The wise men arrived.
My other son stepped forward
Wearing a bathrobe
And a paper crown,
Knelt at the manger
And announced,
"We are the three wise men,
And we are bringing gifts
Of gold,
Common sense
And fur.
"The congregation
Dissolved into laughter,
And the pageant
Got a standing ovation.
"I've never enjoyed a Christmas
Program as much as this one,"
Laughed the pastor,
Wiping tears from his eyes.
"For the rest of my life,
I'll never hear the
Christmas story without
Thinking of
Gold,
Common sense
And fur."
"My children are my pride
And my joy and my greatest
Blessing," I said as I dug
Through my purse for an aspirin.
Jesus had no servants,
Yet they called Him Master.
Had no degree,
Yet they called Him Teacher.
Had no medicines,
Yet they called Him Healer.
Had no army,
Yet kings feared Him.
He won no military battles,
Yet He conquered the world.
He committed no crime,
yet they crucified Him.
He was buried in a tomb,
yet He lives today.
Feel honored
to serve such a Leader
who loves us.
Author Unknown...
Thursday, December 11, 2008
Nice to see...
The doctor's office called and said the new script for loritab was called in and to see how he does for pain on this again and to call on Monday...the Sutent arrived today ready for him to start the second round on Dec 18th...
I feel like we are doing a "Pay it Forward"...with all that we are going through we are managing to help others as well...he's offered our home to Shaun and his dad (Ken in still in SLC) if need be and he's even offered our home to Charli and her family in Indiana...worried bout making ends meet and every time he tries to do or look he feels its not good enough...last five years being rough with the passing of his mom and dad and nanna...the economy...Tim has told him to pack it all up and come out here at least they would have a roof over their heads and we'd all be together...Charli surprised her dad with her coming out and made him happ:D and in turn a young lady did a b e a u t i f u l job on her hair and Tylee didn't realize she made Charli happ:D too and into turn Charli gave Tylee a thank you card and photos of her new hair color and said to use in her portfolio for future hair clients...so they could see what she can do...make Tylee happ:D...when Charli was here we went Christmas shopping at late night for a family in the neighborhood who is in need and try to make the christmas for the kids a lit'l better for them...
Tam and Shaun are headed for SLC this weekend to see his dad and find out what the doctors can do for Ken and/or when he will be coming home...Pray that the two have a safe trip up and back...she will be finished with finals this week...
Pray for the sisterly friend of Tam's that she takes care of herself and that lit'l one she's carrying...she will be happ:D when she gets the gift I asked my mother to make for her....and I do hope she likes it...I still have to finish something for her lit'l one...I still have a month and a half to go....
I better be getting off here...tomorrow is going to be here before you know it and I have to run and get stuff from store and pick up meds...just want everyone to be happ:D and safe...and have a... b e a u t i f u l ...day tomorrow!....mwah
Wednesday, December 10, 2008
Good sleep...
He's kept 7up down and had water and its has stayed down...he laid down for bout an hour and got up and took next dose of loritab...he said he is doing okay with pain...no break through pain...and asked for couple eggs and toast...yes, he has kept that down and I think he is back to being his normal self as much as he can be with the cancer....
I will call K in a little while and let her know his progress...maybe he won't need the home health nurse to come in and give him an IV drip for fluids...and get script called in for loritab to get him thru the weekend and call K again Monday on his progress and let her know how he is doing...
Continued prayers are appreciated for this setback and his strength for energy and that the second round of Sutent is doing it's job and slowing down the cell growth...
Everyone have a sUpEr DuPeR DAY!!!!!! I'll keep ya posted...by:D
Tuesday, December 9, 2008
Allergy to meds...
I went to the wound clinic today as I missed Friday's appt. since he was sick and Mandi is happ:D with the way my shoulder is healing...doing a different dressing with more breatheable gauze and changing every day has made a difference...it has gotten smaller since last Tuesday and will continue to change dressing every day and use and antibiotic ointment...just a faint smear and gauze/tape...don't need to go in til next Tuesday but still have appts scheduled for Fridays but will cancel if don't need them...I could very well be done by Christmas???!!...I hope...but sad at the same time...everyone in the wound clinic is so....I can't seem to find the right word...I love them all and they are that good and concerned with your recovery and I especially love Mandi....
So after the wound clinic, I walked down to the doctors office for him and left message to have K call later in day so I wouldn't miss her call while driving back from my appointment...what other options do we have to try...he's refusing to go to the ER...
K called later this evening early and said from the sounds of it that he has an allergy to morphine...to STOP taking anymore and go back on loritabs and call to let her know how he is doing...if doing okay on loritabs get new script to help him get through the weekend and see how he is doing...he had no problem with loritabs but not sure that will be strong enough for his pain...it's getting more so in his right leg/hip/groin area...K will see about a home health nurse to come in and give him an IV drip to push fluids back into him and make sure he gets hydrated properly...otherwise, he is doing good holding his own except for this setback...
We are expecting his second round of Sutent tomorrow to be delivered by FEDEX and start on December 18th for 4 weeks and off 2 weeks again...it better be worth it at $7000 a whack...even though we only pay $20 copay...sorry, sometimes I feel irritated/frustrated...I don't like to see him this way...as I was driving back home today from Georgetown a thought came to me....that because of his hardships and pain his has suffered in his life my thoughts were that I would want him to be the first to go home and not have to suffer anymore and yet that is almost funn:( NOT...he is still having to suffer...I am there for him and will continue to be...I will be on the love seat again tonight and help him get through the night and get him back on track and start the loritab...something that doesn't make him sick to his stomach....we were hoping for a quality of life through all this...not what is happening...guess that can't be when terminal...you never know from one day to the next how his day will be...try to make his as comfortable as possible and think of different things that he might be able to eat/drink...
It's after midnight...I guess I'd better get off here and get some rest myself...he's laying awake watching a christmas show on Hallmark...it looks like it's going to be a long night til his system is cleared up...we'll both be napping for sure tomorrow or rather today...take care everyone and be safe...Good nIGHT...
Sunday, December 7, 2008
Doing Better...
I slept on the love seat Friday night...he said he wanted someone with him 24 hours until he pulled himself out of the stupor he was in...he didn't like the way he was feeling from the meds...and every nausea meds doesn't seem to be working...I took the pain patch off Friday around 12:30 p.m. and the doctor on call said to give it about six hours and if he improved then we knew what med was the culprit...guess what it was the pain patch...but also he decided on his own to back off everything cold turkey and you're not suppose to do that...so I went with his wishes and stuck with him night and day since Friday to get through this...I even said if he didn't try to sip more he was going to the ER...NO, I'm NOT...slowly got liquids in him and lit'l bits of food more fruit pieces and jello...sips of sprite...got him 7-up today...
He's back to his talking in his sleep again...rambling a mile a minute, think he was going to sleep and within a few minutes he started in again...especially Friday night when I slept in family room on love seat...I think I might have gotten 2 hours sleep and then I slept more during the day when he was sleeping...and just as bad when he wasn't taking any meds...this morning is the first time he decided to take a 1-8 hour morphine pill (time released) and he was really hurting and didn't want to do anything or whatever except get up to use the bathroom...it was a easier for me to give him a sponge bath in the bed and kept telling him to let me do the lifting or holding his leg that hurt and automatic reaction for him was to help...
In his sleep talks, he has mentioned several times he wants to be here for his wife and the girls but it's hard and he hurts and don't know that he can hang on...after getting him cleaned up and covering him up since he gets cold easy now...I was frank with him and said I don't want to sound selfish but I want him here for as long as possible but if he can't do it anymore that it was okay to go home...he said he knew but will be here as long as he can...it'll be hard for awhile but we'll be okay in time....that was so hard telling him and not cry....and it was odd because after he went back to sleep again...whoever he was talking to or with...said end of year or try to in New Year...I'm just a burden...but also something about they wouldn't be out til July again...I'm just guessing that he was talking about our oldest daughter and family as that is when they come out to visit every year...when he woke later on...I told him he wasn't a burden...
Today, his eating is more or at least he's trying but still dealing with the nausea...he's able to hold down 7up, water, applesauce, can fruit natural, jello, yes...and ice cream too in small amounts...everything is in small amounts...he had a lit'l amount of tomato mac...okay, for those who don't know tomato mac is his specialty that I learned about after we got together in 1985...elbow macaroni and tomato juice with whatever side you wanted like cold cuts, etc...or just crackers...he was able to get that down...for dnner he even asked for tuna fish and crackers...didn't work...he couldn't even get the one cracker with tuna on it down...so we tried a lit'l bit of chicken broth...wasn't sure that would sit on his stomach...waited and then had some pears...
Shaun's dad is still in SLC...doctors said he wasn't exactly a candidate for heart surgery but would see what they could do for him...so he's just waiting to see what they are going to do...Shaun's suppose to go up next weekend to take care of legal matters unless his dad calls and says to come get him now...
Wow, when it rain's it pours....Tamra headed back this evening so she could study for finals this week plus clean her dorm and have everything out by Saturday 13th noon or they get charged $100...so she is going to have a busy week and pray she does well with her finals and not worry too much bout her dad and future father in law...
Well, I think I've covered everything that's been going on...hope everyone has a safe week and not tooooo cold where ever you are...good night....
Friday, December 5, 2008
Feeling Hopeful....
We were feeling hopeful after seeing the doctor yesterday...the doc tweaked his meds and hopefully the talking in his sleep and nausea will be less...he was given a different stomach med other than prilosec called pantoprazole he's suppose to start that one this morning...he got a pain patch"fentanyl" good for three days and change out every three days to cut back on morphine pills that can cause the nausea and sleep talking...and a nausea pill called anzemet to see if it helps with the nausea and if does then he takes it along with sutent when he starts back on them on Dec 18th...he has taken sutent for 28 days and now he has to be off 14 days before he starts the second round of sutent...the blood tests are down from every week to once a month...and he goes back to see doctor on Jan 22nd...
I put the patch on him yesterday around 3pm and he cut back from 2 to 1 morphine pills that is timed released...but he's to taper back until the patch starts working...he said he wasn't in any pain this morning...and he wasn't going to take his morphine pill...just maybe the fast acting morphine pill...he didn't sleep talk but his snoring has picked up...some friends let us borrow their hospital bed...now he's able to raise his legs up if he wants but most definitely be able to sit up or lay flat if he wants...last night anyway he said it seemed to make a difference...thx for the use of the bed...even caught him laying on is side sleeping yesterday evening...not side of broken arm...
I get up this morning and he has been up for short bit and sweating like a dog ...no tempture tho...and throwing up...the only thing I can figure out is it's the sutent and not taking it for two days now...like how chemo can make you sick...after he's done he turns around and goes back to sleep...hasn't eaten yet, hasn't taken any morning meds, hasn't even drank any water, he doesn't even want me to call docs to verify that it is the sutent makin' him sick...might sneak a call into the special pharmacy that sends out the sutent by fedex to us and see what they say...
Needless to say, I cancelled my wound clinic appt. this morning and will see Mandi on Tuesday for sure...she has had me change my dressing out after Tuesday to see if it will help dry it up more instead of staying so boggy or wet...so far it looks good when and less wet when I've changed it out every day...we'll see how today looks later on...
Before I forget, on Monday he did get his own motor wheelchair...it's actually nicer in movebility and functions and a bit smaller and he can get into the bathroom with that one so the secretarial chair is now put away...
Shaun's dad is now in the hospital...went up early yesterday morning...the docs finally did an angiogram and he has the choice of going home to die or go to SLC for pacemaker...I gather he's a bit stubborn so hopefully his family convinced him cause Tam called this morning and said they were transporting Shaun's dad to SLC. So prayers are needed for his dad too...Tam has finals next week so pray she doesn't wipeout with everything that is going on...hint hint....future father-in-law....CORRECTION::::: just got a call from Shaun...his dad is going to SLC to see if he is a candidate for a artificial heart or heart transplant....
Well, I think that's all for now...so enjoy your TGIF day and hope you all have a B E A U T I F U L SUNN:D WKEND....
