Oh so long...

Oh, so long in blogging...there hasn't been much to tell...each day can be different from the other but not different...

The pain has lessened but not so if he sits too long then the rods (long and short) connecting together at hip give him more trouble...he found the right combination of pain med...but pharmacy says you can't take that much but yet all of his doctors say he can...so now his pain strength is right but the tylenol part is 175 mg less each time for taking it...so you know when in pain the bite (temperament) is stronger and when no pain you have a happ:D camper and is sunn:D all the way round...

Plus he still is unsure whether he wants to continue the infusion of Zometa...it has made his bones hurt that much more...especially in the areas of the tumors...so we will see come next month...actually on June 10Th...if he does another one or not...at $5313 a whack...thank goodness for the insurance...

We had been putting off going out to early vote for city council members and finally had to do it today...since Tuesday will be the actual election day and it's liable to be busy because many may have put it off like us...we got there and were the only ones voting until after leaving and some other voters started showing up...

I made a stop at the pharmacy to pick up the blood thinners enough to get him through for 10 days at dosage doctor wants him to take...seems to have leveled out and after seeing the doctor this coming Tuesday, we'll know more on how soon he can put weight on his leg and how long on the coumadin...a chance he may be going off of it after seeing the doctor...

I still set the alarm to make sure he has meds at 3 a.m. and then up again at 7 a.m....I have over slept a couple mornings this week...he intentionally let me sleep...may be good...somehow, it feels like it throws my day off...like today, Tamra home and it makes it feel like Saturday not Friday...

We heard today our niece needs more prayers...she had an appointment with doctor to see how she is doing but also complaining of discomfort...seems she has gall stones...don't know much else on the blood clots situation yet...the stints and meds assume are working...when it rains it pours...she was thinking about going back to work part-time...sounds like she would be pushing it...

I don't have much more to tell so with it being a Friday...yeaaaaaaaaaaa....I wish you all a safe and happ:D weekend...:D

Happenings...

Happenings since last posting is mixed...niece is holding her own so far and still at home...her sister got back home with her family in Georgetown...

My mom come to find out she has gout...yes, gout in her wrist/hands...it can show up in any joint area and be painful/swollen...the doctors have her on prednisone and tapering her off and then try non-steroid medicine to see if it continues to help...course the steroids spike her blood sugars so she has to be careful in what she eats...me too...

We have family members who had a surgery on her hand (broke and had 3 pins put in) and one needing surgery on his hand...our prayers will be with them both in speedy recovery and going through the surgery...

He's had his infusion of zometa Tuesday but not so sure he wants to continue with getting it each month...it has made him feel awful...now, his healed fractured arm is bother him to the point that tonight he has put the brace back on...he has even started throwing up thinking it was going to be a burp...he got surprised and good thing I was quick...:( so I'm trying to convince him he needs to eat a little something every few hours to make sure he as something on his stomach because the meds could be affecting him when he doesn't eat since having the infusion...he just has so many things going on and but also trying to find the right combination for the pain meds...this is why he may sleep alot so he doesn't have to feel the pain til it wakes him up...like I said a mixed bag of things going on...

I have to say I have been on facebook several times and don't particularly like it as well as myspace...but because of several people...I got back on to keep better in touch...but our youngest, Tam got me hooked in playing this game...ohhhhhhhhh, wow...I have hustled to get work to get where I'm at in the past five days...it is a destresser for me at late evening...I'm building my farm and enlarging it quite nicely...I do think so myself :D ...

Anyway, I have met and chatted with some nice people...one from NC and LA and even Chile...who has sent blessings for him...the more I talk to people, I am realizing how much we all have in common to a point...that this is a small world and we all are connected in some small way or another in diverse ways...just watching Patrick Swayze's story fighting cancer...how him and his wife feel which is what we have said and feel too...now with Farrah's story this past Saturday night on NBC...my prayers are with her and Ryan but feel from her status of watching it may not be long and she'll be in God's hands...it's what I'll be going through when his medicines quit working for him...like going to services of family/friends whom passed...reminds me of what I will have to go through...but positive side...he's a fighter and so am I and together we'll get through this until that time comes...

On the lighter side, I think...lol...I've said we've been having warm weather this past week of 100 degrees...ugggghhhh, it hit 106 today off back porch and that is in the shade....yeah....not/nor have I ever gotten used to this hot weather and I'm originally born and raised in Alaska for twenty-five years and now here since 1985....:D....

Well, elf...eryone I'm going to say good night and wish you all a good week and pray for all...be safe, someone helps you, pay it forward and then maybe we can have a ripple effect and in some way make some changes however small or large...much love to all :D

More prayers needed...

I have more news of others needing our prayers...my mom's left wrist/hand are swollen like her right thumb/hand was...pray all okay...makes me think she has a spider/s nesting somewhere...

I am requesting prayers for a dear friend who has had a lot going on in her life these last few years...good in tween it all...losing Joe few years ago who had heart surgery some years before...finding another love in her life :D...losing her mom just a couple months ago and now her dad Tyke (apologies if name spelled wrong) needing open heart surgery...the saying, "Will it ever end"...I have heard quite a bit here lately...:(

I don't know what is going on in others lives but our prayers are out there for all of you...somehow we all can be an inspiration to each other and for all...we can make a difference...my blogging may be helping someone go through their process of happenings...Patrick Swayze's special back in January...made me understand we aren't the only ones having the same feelings...a lot of what was said in his special...all I could do was "omg, that's what we both are feeling"...just get out there and talk and know someone does understand what's going on....if you are reading this in time and have a chance...watch Farrah's special tonight on NBC...my understanding is after you watch it you'll want to go hugs your own and cry a lot...

I heard someone say on TV...maybe it was Ryan's...forgive me if I don't remember all of the beginning..."It was something but it was easier to die"...not sure I agree with that...dying isn't easier...not when you see your loved one suffering at times, dealing with the pain but not wanting to be on too much pain meds...to trying to be a good caretaker as well as a spouse or whatever the relationship is...Patrick has it much easier as he has all his limbs to use still...whereas he has dealt with a fractured left arm and now a fractured leg/hip...hoping heals enuff for him to at least put some weight on with use of cane or walker later...wondering why he has to do exercises if there's a chance of him breaking/fracturing more bones....tried to explain that his muscle toning will help keep the bones strong as much as possible and also help with circulation...

He wants some sort of normalcy back...I am just so thankful for his friends who come over and have coffee here with him...to one special couple who have their health issues too, who have brought over homemade soup and bread last week and this week...omg talk about some mean soups...chicken noodles and now beef barley to die for...wow...I feel guilty cause they, like I said have health issues...hope his doctor's appointment today is encouraging on news for his knee/s...

So for all of you out there near and far, family/friends or strangers reading this..."May the White Light of the Holy Spirit" surround you in his loving arms and keep you safe and help you through your happenings...God Bless you all!!!!.......

Be safe and have a gr8t weekend...much luv to all :D

Good news...

Good news...our niece got released home yesterday but not back to work for awhile...she has to give time with meds and less stress...her body telling her to slow down...too much work can get ya in trouble...

Lates on him nobody understand that...lol...Latest on him...he had his appointment with cancer doctor on Monday...doc Joe placed orders for his infusion on Tuesday 12th at Mesa...after stat on blood work to be sure the dosage is right...doctor said due to him starting back on his sutent a couple of weeks later after hip/leg fracture and based on the mixed test results from end February on CT and bone scan...refresh mem...tumor shrunk in kidneys, tumor in liver stable but still spreading in bones...doc may change his med from sutent to another...he was wanting to do the infusion to have tried to prevent these pathological fractures from happening...so play by ear and see if next doc visit he changes or waits til after next set of Ct and bone scan done again...change med...

The trip to Georgetown always seems tiring for him and he slept most the day off and on...the home health nurse still comes in twice a week...checks his blood for the right dose on blood thinner...still don't have adjusted right...he was doing 2mg then went to 4 mg for 3 days but then his blood level for blood thinner was too high so went off of it 3 days...rechecked and back on 2 mgs but wee bit too long again...so, he's doing every other day of 2mg then 4mg then 2mg etc...his blood will be checked again on Friday...it may still get adjusted again...

It was an early morning yesterday...we got to the hospital and didn't have to wait long to register for labs stat...then go up to 2nd floor and nurse's station said it would be done in ICU...by the time we got there and nurse Diane set up his IV and let it slowly drip...she had results in and he was to be given the full dose of 4mg of zometa...he lay on the bed for comfortableness...his hip/leg still bothers him but FOR SURE not like on day of incident or for several days after surgery...once she started the drip of zometa it took right at 25 minutes and shortly after that Tam came in and we headed home...he did ask what the side effects were...feeling bit gaggy...got home and slept most morning...kept saying rest of day his bones hurt not like before but differently...especially in the areas of where the tumors are in his shoulders, leg/hip, previous fractured arm..."not sure what that zometa is doing but it sure is taking hold of those areas"...

He woke this morning freezing...put 2 xtra blankets on him...slept some more and woke feeling warm...but this afternoon he cold again...after getting hot so the zometa got to be working and maybe also in conjunction with the sutent...

He made comment that after he heals from fracture and weight bearing on leg/hip again...he is looking forward to getting out and having coffee with his buds...:D that sure sounds like his old self, a fighter like me...everyone that sees him says he looks good and wouldn't know he had cancer cuz it's not really visible...

It's good thing he/we didn't have anywhere to go today...another windy day with gusts...can't handle that wind with my lungs...well, guess go for now...have some time to myself while he sleeps/naps I either nap with him or relax being a farmer...lol...most of ya'll knoz what I talkin' bout...have a gr8t evening...bye all...

Updates...

Updates...my mom is doing well from form of bug bite on her thumb/hand and her iron levels are back up and she's back to one shot a month...

Our niece - last update this morning...she came through surgery just fine, still on oxygen as still hard to breathe...the doctors got the filters put in to help stop the clots...there is still the one headed for her heart and docs are keeping an eye on that...so with filters and meds they're hoping dissolve the clots, she now has a fighting chance...hopefully, the docs won't have to go in and open her heart up to try to retrieve that one...will keep all posted...

Today was mostly trying to catch up on sleep...lol...like anyone ever does...It got windy here so I didn't go anywhere, besides hitting 100 degrees again for the third day (at least off our back porch) let daughter get mail and paper when she got back from Vegas...headed back tomorrow morning for work then back home again tomorrow evening til Tuesday morning...

She has found a room to rent with some friends starting next month for the summer but mostly for college next fall...she had her experience with college dorming and that was enuff...lol...some student neighbors not having courtesy to keep their noise down...

Our prayers go out to all who are having services these few days and that they find comfort as time heals all...

Elf...eryone be safe this weekend and enjoy Sunday...

Full Moon...

Oh so many things happening in town, with friends, family...like some are saying "omg when is it going to end"...I kept saying it's the full moon...don't think so now...too much...

Different families around town hurt in accidents/illnesses/some out of stupidity for attention, some serious...some fatal...in ours - nephew passing-heart attack...my Tim - surgery to help hold his leg/hip together to have chance to heal from pathological fracture around the tumor area of his leg(xray looked liked cracked egg when you tap to break one open to fry)...niece - blood clots in lung, also showing in lower extremities - needing surgery to give her some kind of fighting chance by putting in filters to help stop them til meds have chance to help dissolve them all...there's one already moving towards her heart...no further word yet...needing a lot of prayers for her...As Tim said earlier today, it's happening to all our young and not the older ones...

Update...he took himself off the stronger pain meds Dr. Todd put him on Tuesday...he just didn't like the way it was making him feel odd and his chest bothering him...since he changed back to the lortabs this morning he feels a lot better...he said that would probably be one of the meds he would use later on when nothing else works and the cancer treatment isn't working anymore...he can't see why anyone would want to be on that stuff and be doped up all the time...I don't like that feeling either and nor do the girls...

He got started back on the "Sutent" today and his coumadin (blood will be check again on Monday to make sure of the right dosage)...his cancer appointment is on Monday late
morning...hopefully, he'll get that infusion to help manage his pain as well along with helping out in strengthening them bones up too...

One of his coffee buds...wife made homemade chicken noodle soup (even the noodles) and some fresh homemade bread and chocolate chips cookies yesterday and brought over for dinner...omg talk bout a mean chicken soup...WOW...still eaten' on it tonight...actually had some at lunch too...wasn't that much but not big eaters either so still have enuff for 2morrow...:D~

If you haven't picked up on it yet...when I'z tired I get rather silly...come up with these goofy comments...reason I say this is...he was taking a nap yesterday and sometimes during his sleep his hands get to movin' and making different jesters and suddenly out of the blue his right hand comes up and shows the peace sign...all I could do was say, "Peace brother"...cuz I was tired it struck me funn:D and all I could do was laugh silly....I'm alright it's the other guy that's not....tehe

Well guess will make this it for 2night and wish elf...eryone a TGIF day 2morrow...if in I don't gets to blog b4 Sunday all you moms out there have a super duper gr8t day...





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Apologies...

My apologies in loosing my right side widgets...was trying to change my background and thought I had everything saved before changing it...give me time and I'll have it all back on...

So while I'm on, I will bring elf...eryone up to date...:D...he saw Dr. Todd yesterday and got the staples removed and the post-op wounds are looking good...the doc has agreed that for now he can do the p.t. on his own...he's to return in four weeks and have x-rays to see how it's healing...the x-rays we got to look at yesterday were awesome...I mean in that you saw the rod and screws holding it all together and the fracture...just like in his arm...looks like playing tug of war and the rope would break in the middle...well the break was in the area of the tumor and looking at the x-rays the leg was pinned together pretty good as far as matching the the two sides together to hopefully heal itself...that's what they wanted to do with his arm and he said no...also his cancer hadn't been contained yet to keep it from spreading any further...with this break the docs had no choice but to go in and put the rod in his leg to help it heal as much as it can...

With both ortho and oncologist docs, they both agreed he can get started back on his "Sutent" which will be the 5th round but just 2 weeks late starting back on...don't know how this will affect the tests being done again at the end of June...may be postponed til middle of July...the tests referring to are the CT and whole body bone scan...which both tests take 2 and 4 hours due to the contrast he has to drink and then the nucleur shot for him to light up like a Christmas tree and this is all to see how the "Sutent" is stopping the progression of the cancer...we are now working at beating the odds again and pushing for that year...we get past that year then we'll push for that 2nd year :D...just like Patrick Swayze...he's beat the odds and putting up a fight...he's going into his 2nd year...recent fotos in the news showed he was almost skin/bone in the face :(...

A bit melancholy and not much to say...sorry....elf...eryone have a good day...:D

For each ONE of OUR girls...

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Doing better but a sorrowful day too...

First off, our hearts go out to the Jensen family in their loss of Shane. May Gods arms surround them in love and comfort each day. Our prayers are with the family and friends...

Tim is doing better today as far as getting in and out of bed...he still struggles to lift the right leg...he has learned to roll to his side and bring both legs down on his own and with the use of the walker and his jazzy chair he is getting around...he's concerned that he is wearing me down too much...I struggle in the mornings to help him as I'm slow to getting my energy revved up or as he says my 1st wind, 2nd wind or even 3rd wind which kicks in at about bedtime...lol...:D

His pain from the surgery is a lit'l bit less but the rod and screws still give him some discomfort...I think maybe yesterday was his worst day for pain and again I feel that the weather has a lot to do with it...CLOUDY and CHANCE OF RAIN...he didn't realize that the surgery would take so much out of him...now he understands what I went through with my knee/leg surgery in 2003...I didn't even want to move out of bed...I was in hospital 3 weeks, rehab 2 weeks and then had out patient p.t...

He has even lost his appetite somewhat too...thought it was picking back up from being in the hospital but not there since coming home...his coffee buds have come by several times this past week and I played waitress and served them coffee...tehe...that's sounds funn:D...I haven't waitressed for years...

Anyhow, his outlook is better this morning...wishes his appetite was better but that will come in time again..his appointment with the Dr Todd is on Tuesday and hoping doc is happ:D with his progress...he doesn't want p.t. to come to the house anymore...feels he/we can do on his own...oh, did find out the reason for the home nurse to come out is to check his protime (blood levels for coumadin-blood thinner)...the hospital didn't have time to regulate the right levels for him so once he's leveled out then it'll be checked about once a week...for 6 weeks not 3 weeks...I still continue to learn new stuff...


With Mesquite Days here, I hope elf...eryone is being safe and having fun...enjoy your weekend...