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Saturday, June 27, 2009

Wild Day....So sorry my apologies to everyone...

Well to start off with, Tim is holding his own...still suffering pain in his fractured leg due to the rod and screws - could be a combination of things: such as the healing process, the weather and maybe the infusion again...still not eating much at times but we are working on that...he's worried bout money stretching out to cover the regular bills let alone the insurance premiums every month...then supposedly I won't be covered by supplemental health insurance as secondary to medicare cuz I'm not old enuff...brb dog needs out :D
So that means my pre-exiting condition is or will never be covered by any insurance that will pick me up if at all...somehow that doesn't sound right...will have to check it out...

Otherwise everything has been going pretty good up til yesterday morning when our son-in-law called and I talked with him a few minutes and then all of a sudden I got lightheaded so I bent over to help control it...threw the phone at Tim and said to talk with Gary...I tried standing up and the feeling still came over me and I'd try sitting but couldn't sit straight up, I was bending at the waist again...kind of in a panic but talked myself down as much as possible...

Tam was in Vegas and I said not to call her to just call 911-waiting for her would take too long...he couldn't drive nor could I the shape I was in...so he called a friend who just had hip surgery few weeks back and might add is doing super good in healing...Lori came over and Red came with his wife. I had to walk out stooped over afraid that feeling would come over me again...the last time I went thru something like this was in 2000 when I had a rapid heart beat before taking Tamra to school and thought I was going to pass out...I thought that was scary but think this was worse because my blood sugars were good and blood pressure normal actually better than good...my words weren't slurred and I could raise my arms above my head and talk at the same time so figured not stroke...but still felt like I was going to pass out every time I tried to straighten up...

The ER was trying to rule out everything...CT brain for stroke, chest x-ray (not sure the reason for that or that I remember what they told me), blood work make sure chemicals were in balance...I did have an IV drip of potassium and magnesium as they both were low...so it's come down to inner ear problem...they gave me antivert to help but because I started to get soooooo antsy like I was ready to climb the walls and scream they gave me benadryl to help calm me...something in all of this started out making me sound like I was on a happ:D pill or been drinking...then all of a sudden I'm not sure what to say...I remember little bits and pieces but that I couldn't handle it!!!!!!...I can't stand to be soooo tired and yet feel antsy that I climb the walls...maybe my RLS (restless leg syndrome) added to it to...I don't know...I DO APOLOGIZE to everyone if I said or done anything out of line...like Tim and Tamra were telling me, they have never seen me like that before and even Lori said what a BIG transformation in my character...she was even worried for me...I would say I am allergic to something or combo of things set it off...

I don't even remember eating but there was something about having some acai juice and mixing magnesium powder in it and pouring it over bacon and trying to drink it off the paper plate...I know it wasn't funn:D at the time but to hear it now it sounds funn:D...sorry. I am soooooo sorry to my husband and especially to our daughter Tamra when she was only trying to help...I guess after trying the couch and not working I went into the bedroom and went to bed...because of her dad she came in woke me at 8:30pm and I think we ate Arby's so if I don't have any of this totally right she can correct me...I believe I was up for awhile not sure if I got in myspace or facebook last night...if I did I hope I was good with everyone...come to think of it I was on facebook and finally decided it was time to go to bed when my head hit the desk while dozing...lol...omg, I was a total mess last two days...I never want to go thru that again...whatever brought it on...then to have my character totally change...as today progressed on and took more naps and got the benadryl out of me and felt I had my faculties back I started feeling more myself...but I am continuing with the earplug in my left ear and using the travel sickness pill every 6 hours as needed when I feel that feeling starting to come over me again...so far its been pretty steady every six hours too...the hospital even called today to see how I was doing and to make sure I was taking the travel sickness pill...which I did after more of the benadryl wore off...

Right now I'm not sure whats going on and I just want to bawl...it just seems one thing right after the other and I'm strong and optimistic but enough...to see him today and this evening has me concerned...he says he's alright but his body language is saying otherwise...I think I really had him worried and still do...I don't think or I should say he doesn't want to be left alone again...by losing another wife...in death...that's why if anyone was to go it has to be him first not me...in a lot of ways I feel I'm stronger than him but yet he is strong-look what he has already gone through...but even that can be more than enough for one man...there was a question posed just recently asking where I thought I would be in 10 years time...I honestly answered "Living with one of our daughters"...oh, I don't want to be a burdened to them...

Well, he got his meds at 11pm with his magnesium drink and hopefully he'll rest peacefully knowing I am doing better...I think I will sleep on the couch tonight and make sure he does okay through the night after all that has gone on last couple of days...Tam will be home tomorrow as she will be taking me to my doctor's appointment first thing MOnday morning at 8am...so I will keep all posted...again my apologies to everyone and you all have a happ:D safe Sunday...good night...:D

Saturday, June 13, 2009

Too long in updates...

Too long in giving you all updates and my apologies...it has been a long week and next month will be even longer and harder on one particular day July 17th when we have to be in Georgetown for 8 hours plus the drive time to and from....

Tam's fiance Shaun is having problems with his back again...docs, x-rays, MRI's...now off 5 days til results come back...depending on results either surgery or steroids shots...he will be in our prayers as well...his dad Ken is doing really good...

But to the updates...our niece who is having clot issues is still off work on short term disability and went in for a follow-up and found out why she is having so much pain...gall bladder...she is very high risk for surgery...her own doctor told her no doctors would touch her because her survival rate would be...doc couldn't even give her a 1% survival rate...she could die on the table...she has opted out and on heavy pain meds...doctor said she doesn't need her gall bladder, to let it die off and hopefully get through the pain with medication...we really feel for her and have her in our prayers daily...

He had labs done on Monday 8th at the hospital here in town and then on Wednesday 10th, we went to Georgetown and saw his oncologist...he was a bit low in phosphorus and slightly anemic...we told doctor about the infusion of zometa last month and how much pain it caused him and a bit of nausea and coldness he had for about a week...doctor recommended he try it again and if still the same reaction to stop getting the infusion...but while he was getting the infusion to add the phosphorus to it...to continue on the "Sutent"...so when we got home I ordered the last refill of "Sutent" and to be delivered on Tuesday by FedEx...got a new script for his lortab and a long acting pain patch to help him cut back on the pain pills...the patch last for 3 days at 25mg fentanyl if he needs stronger dose then go to two patches...hopefully this one won't make him sick like the morphine pain patches did...he's finding out he is becoming more sensitive to other medications...my mom is the same way...but then all you have to do is listen to your body and it''ll let you know if the medication is right or wrong for you...then on Thursday 11th, we went to the hospital here and he got set up for the infusion for 2 hours we were told...ahhhhh....what?...the doctor decided to add potassium to the infusion and it has to go in slowly otherwise it would affect his heart...see you need potassium for your heart to function properly among other chemicals...so instead of 30 minutes it was 2 hours...uhhhummmm...try 3 hours...along with zometa...so we opted as you can tell for half the potassium on Thursday and to come back Friday morning for the other 20mg of potassium in an IV drip or infusion...it was only 2 hours....yeaaaaaaaaaa :D...

We stopped to get lunch and check the mail...ate lunch...he took nap...I washed clothes, put my Taco soup in crock pot for four hours and baked a blackberry pie...ohhhhhh, that was soooooo good....you know it was good enuff to use as a blackberry jam too...I can use the same recipe for any type of berry pie...I have never made a berry pie...usually apple, peach, cherry and of course good ole' pumpkin yummmm...tehe...never thought to make a berry pie...then Smith's last year in season had them at the store and I bought one...oh, it was good and have been looking for the pies again this year...nothing yet...but a friend Tony gave me the recipe and so simple...I tyvm....:)

We got next months appointments scheduled...monthly labs July 15th here at hospital then the CT of abdomen and nuclear Bone Scan (where he lights up like a Christmas Tree-why you say?...because on the monitor he lights up green...tehe...a lit'l humor there) in Georgetown...then back on Wednesday 22nd to see oncologist for the results to see it the "Sutent" is continuing to slow down or stabilize the cancer cells...last report tumor shrunk some in the kidney and stabilized the tumor in the liver but a mixed bag that the cancer was still spreading in the bones...doctor is hoping for better results this time on the bones...otherwise, doctor will be changing his meds for treating...I was reading there is a new one out for the kidneys but not sure what doctor's thoughts are on it...we'll wait and see next month...so we have another breather for another three weeks...

I am holding my own and using my down time to relax by visiting and chatting with all my new friends and farming tehe...FarmTown...whoooo hooooo...talk about diversity of ppl...from Belgium, England, Philippines, Canada, Australia, Chile, Scotland, Spain (only Tatakoa showed me a translator to use so we can talk and maybe I'll learn some Spanish too-that was fun) UT, IN, NC, MO, AK, LA, CA, GA and many more, oh and of course good ole' NV...:D...my apologies for not getting on today yet...needed some sleeping in time and blogging as well...I have them not as often but get hit with it still...it's been one of them days where I'm fighting back the tears off and on today...sorry :( but I be ok...I always am...:)~ that's strawberries to you...tehe...

Our weather has been pretty mild except for the winds...had a few days of over 100 degrees but it'll hit with a vengeance soon enough...hopefully, we won't get hit with any 120's...lol...so I think I have covered all the basis...oh, maybe not...our youngest on Monday will be moving to Vegas to share a place with some friends as it will be closer to her job and college coming up again in September...but she will jaunt home to check on us...told her not to fret she has to do it one of these days anyway...now is just as good as a later time...she's been somewhat of a caretaker LONG enuff for her mom when he was working and now her dad...she needs to get her life started...:D lvu babes...

I hope this finds elf...eryone having a happ:D and fun weekend being safe careful and very much loved and surrounded by family and friends...prayers are with you all...:D

Tuesday, June 2, 2009

Doctor today....

He saw the doctor today actually this late morning...x-rays are looking good...shows this big Ole rod in his leg to help hold together while his leg heals and especially round the tumor area and the cloudiness in the x-ray is doing what it suppose to-healing...but the long rod is there if it was ever to change down the road...or if it wasn't healing properly this past five weeks...

The doctor also said he could go off his blood thinners (coumadin) and it should be out of his system in about 3-4 days and then if he needs it go back to using naproxen with his lortabs...naproxen also acts as a form of aspirin too...

He is suppose to start using his walker/cane/crutches - which ever suits him and put weight on his leg and over time more weight but to realize he can't go with any of those choices for the rest of his life...hahaha...doctor said he was taking it well and upbeat...what else can you do but that and try to defy the odds...

We met a nice lady from church and she kept thinking she knew our daughter - she did and finally came over to say hi and well wishes...we her too...recovery from knee surgery...just so many people needing prayers...MaryAnn not sure what's going on in her life - saw pic of her strapping young man who graduated...others making decisions in their lives moving, school, etc...family members needing surgery and friends as well...I pray that our niece who hasn't been home long from the hospital with meds for fighting blood clots - right now is going through surgery for her gall bladder and she is soooo high risk....mom still having problems again with hands swelling and in pain from the gout...steroid therapy didn't work for long nor the other medication used...a friends father not needing heart surgery just stints and glad to hear he's feeling a lot better...Tim talked with him a few days ago...praying that my scrappers hubby is holding and continues doing good...just so many and knowing you can't get them all mentioned in here...so this goes out to all near and far, sick and healing, whatever your needs are, you're in our prayers...:*)

A happ:D note ...TO ALL THOSE FARM TOWN ADDICTS out there...LOL...be safe and have a good week to elf...eryone....boo

p.s. Belated Happ:D B-days to those I've missed and those coming up in June...happ:D b-day Jamie Wade...