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Saturday, June 13, 2009

Too long in updates...

Too long in giving you all updates and my apologies...it has been a long week and next month will be even longer and harder on one particular day July 17th when we have to be in Georgetown for 8 hours plus the drive time to and from....

Tam's fiance Shaun is having problems with his back again...docs, x-rays, MRI's...now off 5 days til results come back...depending on results either surgery or steroids shots...he will be in our prayers as well...his dad Ken is doing really good...

But to the updates...our niece who is having clot issues is still off work on short term disability and went in for a follow-up and found out why she is having so much pain...gall bladder...she is very high risk for surgery...her own doctor told her no doctors would touch her because her survival rate would be...doc couldn't even give her a 1% survival rate...she could die on the table...she has opted out and on heavy pain meds...doctor said she doesn't need her gall bladder, to let it die off and hopefully get through the pain with medication...we really feel for her and have her in our prayers daily...

He had labs done on Monday 8th at the hospital here in town and then on Wednesday 10th, we went to Georgetown and saw his oncologist...he was a bit low in phosphorus and slightly anemic...we told doctor about the infusion of zometa last month and how much pain it caused him and a bit of nausea and coldness he had for about a week...doctor recommended he try it again and if still the same reaction to stop getting the infusion...but while he was getting the infusion to add the phosphorus to it...to continue on the "Sutent"...so when we got home I ordered the last refill of "Sutent" and to be delivered on Tuesday by FedEx...got a new script for his lortab and a long acting pain patch to help him cut back on the pain pills...the patch last for 3 days at 25mg fentanyl if he needs stronger dose then go to two patches...hopefully this one won't make him sick like the morphine pain patches did...he's finding out he is becoming more sensitive to other medications...my mom is the same way...but then all you have to do is listen to your body and it''ll let you know if the medication is right or wrong for you...then on Thursday 11th, we went to the hospital here and he got set up for the infusion for 2 hours we were told...ahhhhh....what?...the doctor decided to add potassium to the infusion and it has to go in slowly otherwise it would affect his heart...see you need potassium for your heart to function properly among other chemicals...so instead of 30 minutes it was 2 hours...uhhhummmm...try 3 hours...along with zometa...so we opted as you can tell for half the potassium on Thursday and to come back Friday morning for the other 20mg of potassium in an IV drip or infusion...it was only 2 hours....yeaaaaaaaaaa :D...

We stopped to get lunch and check the mail...ate lunch...he took nap...I washed clothes, put my Taco soup in crock pot for four hours and baked a blackberry pie...ohhhhhh, that was soooooo good....you know it was good enuff to use as a blackberry jam too...I can use the same recipe for any type of berry pie...I have never made a berry pie...usually apple, peach, cherry and of course good ole' pumpkin yummmm...tehe...never thought to make a berry pie...then Smith's last year in season had them at the store and I bought one...oh, it was good and have been looking for the pies again this year...nothing yet...but a friend Tony gave me the recipe and so simple...I tyvm....:)

We got next months appointments scheduled...monthly labs July 15th here at hospital then the CT of abdomen and nuclear Bone Scan (where he lights up like a Christmas Tree-why you say?...because on the monitor he lights up green...tehe...a lit'l humor there) in Georgetown...then back on Wednesday 22nd to see oncologist for the results to see it the "Sutent" is continuing to slow down or stabilize the cancer cells...last report tumor shrunk some in the kidney and stabilized the tumor in the liver but a mixed bag that the cancer was still spreading in the bones...doctor is hoping for better results this time on the bones...otherwise, doctor will be changing his meds for treating...I was reading there is a new one out for the kidneys but not sure what doctor's thoughts are on it...we'll wait and see next month...so we have another breather for another three weeks...

I am holding my own and using my down time to relax by visiting and chatting with all my new friends and farming tehe...FarmTown...whoooo hooooo...talk about diversity of ppl...from Belgium, England, Philippines, Canada, Australia, Chile, Scotland, Spain (only Tatakoa showed me a translator to use so we can talk and maybe I'll learn some Spanish too-that was fun) UT, IN, NC, MO, AK, LA, CA, GA and many more, oh and of course good ole' NV...:D...my apologies for not getting on today yet...needed some sleeping in time and blogging as well...I have them not as often but get hit with it still...it's been one of them days where I'm fighting back the tears off and on today...sorry :( but I be ok...I always am...:)~ that's strawberries to you...tehe...

Our weather has been pretty mild except for the winds...had a few days of over 100 degrees but it'll hit with a vengeance soon enough...hopefully, we won't get hit with any 120's...lol...so I think I have covered all the basis...oh, maybe not...our youngest on Monday will be moving to Vegas to share a place with some friends as it will be closer to her job and college coming up again in September...but she will jaunt home to check on us...told her not to fret she has to do it one of these days anyway...now is just as good as a later time...she's been somewhat of a caretaker LONG enuff for her mom when he was working and now her dad...she needs to get her life started...:D lvu babes...

I hope this finds elf...eryone having a happ:D and fun weekend being safe careful and very much loved and surrounded by family and friends...prayers are with you all...:D

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