Wow, it's been a week already...where does the time go anymore?...seems like it's been hectic or something going on and I haven't had time to myself like I might get in the evening to blog or whatever or let loose (cry to keep me going)...
Sorry, I re-read this and had too many errors...so am fixing them if you happen to get this a second time...again, I apologize.
He had those appointments for blood work, then the two tests (CT, bone scan) back to back and us missing naps...still trying to recoup and catch up...but also we have offered our home to daughter's fiance' and his dad...Shaun has been working 3 days a week sometimes 4 days...escorting his dad to doctors appointments, etc...his dad got laid off and filed for unemployment and then come to find out he gets turned down because he can't look for work...but got info that they are going to call and talk with him...mean time, he puts call into Social Security Disability and his phone appointment is today...Shaun trying to handle it all...so til things/economy turns around they are staying with us...we did some rearranging in the house...still recouping from that and the appts...with my sarcoidosis if I over do it...I get set back and my energy, etc is zapped out of me and sometimes takes awhile for me to recoup...
He's still hurting and seems like it's getting worse...we're still trying to make adjustments to his meds...went from 1 every 6 hours and 2 at bed from 1-2 every 5 hours depending how he feels and 2 at bed...with naproxen 'tween...the cool weather isn't helping either...just feeling frustrated...he doesn't want to just lay in bed and give up so I've convinced him to bump up to every 5 hours and see how that works...also have a call put into the doctor...did the infusion get approved by the insurance and if so is there a chance we can get it sooner than April 15 (besides working with the sutent on the slowing it down, it helps strengthens his bones and helps take some more of the pain away...he doesn't want to do radiation for the pain as it will cause sores as well)...then do it again on the 15th as my understanding it's every 3-4 weeks...assuming it's the "zometa" that he will be getting in that infusion...????
I'm trying to hang in there and sometimes when I don't have my quiet time/nap or time at night to let loose sometimes I don't think I'm going to make it but then I talk to God at night and leave it in his hands...I do good for a short while...mostly day to day...
Do you ever feel like once in a while things pile up too much and you just want to throw everything into a pile and set a torch to it????....start fresh body, mind and otherwise....sometimes life gets too complicated and it shouldn't be that way...do too much, please too many...as a saying sez, "Be useful and don't be used"...now, I'm probably not making any sense...hahahaha...just letting loose....
I have my headphones on listening to music while writing this and Dolly's song "I will always love you" came on...that's one of our songs when we first met...he was asking what the names were so he could write them in his journal that Tam got for him at Christmas...oh now, "A Summer Place" is playing...Henry Mancini, sorry just checked its 101 Strings playing it...
Anyway, hope elf...eryone else is doing as best as possible with whats going on in this world/economy and phone rang...brb...doctor said infusion was approved for zometa and that he can go up to every 4 hours on his lortab but if he wants to do infusion sooner that April 15h to call and he'll set it up...he's awake and wanting lunch so will go for now...forgive any errors...much luv to all...:D
Harlee
16 years ago















