HaPp:D bIrThDaY hOn...DaD...pApPy...RuFf RuFf

HAPP:D BIRTHDAY GREETINGS...TIM

Yes, today is his 65th birthday and I think by far one of the best yet...Kelvin and Chloe came by last night...ma and Larraine today for a few minutes with a Cake/Icecream combo...Tamra made a surprise trip home last night to be here for his birthday, but sadly had to leave at noon for college classes today...Freda his sister called saying her wishes too...Charli called wishing him a happy birthday and SURPRISE...flowers too...so pretty and uhhhmmmm smelllll sooooo good too...my gift for him is his favorite meal...my style of chicken fried steak, country gravy, mashed tators...yah, I know sounds like allot, but it will be the amount he has been able to eat...like a bird...LOL...

Sorry for the way the pictures posted on the blog...they all look discombobulated...lol...the best you going to get of me today with ponytail and no makeup...tehe...I know I have goofy words I use...the girls tell me I'm a dork or funn:D...that's me folks...yes, today has been good so far...including the weather...

As for other things, I went to pick up our prescriptions for this month on prescription part D...mind you I had $800 set aside...it came to $610.77 after discounted and both each $295.00 deductible met...oh and that doesn't include my testing strips...they are over $200 for 2 boxes so I am getting paperwork for the doctor to fill out beside myself to take back and run through Medicare Part B...which is suppose to cover 80% and then I pay the 20% so that may be around $40...but doctors office hasn't called back to say ready. Be my luck they will call about the time I start working on dinner...

Now, it's quiet and he's sleeping again...maybe I should take a nap too...I wish everyone who has b-day's this month a good, happ:D one especially those just in the last few days...Ramona, Tammy-my niece, Larraine-Tim's cousin and also long time friend Loye both as well Today too....be safe...be happ:D...much luv to all...

Fotos...

I asked him if he would weigh himself to see how much weight he has lost...he's down from 163 to 154 within three weeks of last seeing the doctor...

After cleaning the house, I took couple of pictures of him...full body and bust...he tries so hard to smile but it's not there...he did eat good tonight and seemed to perk up because Tamra was coming home til Sunday night as she has her practicum first thing Monday morning at Ruby Thomas Elementary School...practicum for those who don't know...it is where she will practice teach under her mentor teacher...she loves it...she has even made a comment that she will be disappointed when she has to leave them in December when her semester is up...

And we've been running hotttttt here last few days...110 degrees...suppose to start cooling off...nights are nice though...gosh I wish our families were closer together....:)

This is going to be short and wishing you all a hApP:D SuNdAy...:D

Frail...

Frail...not sure if that is the right word to say...he's lost more weight and I am not sure how much he weighs...should see if he can get on the scale...we think he starts doing good on eating and then he's back to having a hard time eating anything...like one step forward and then three steps backwards...:(

I am constantly looking at him when he sleeps...at times I have to look hard to see if he is still breathing...my heart starts to skip a beat and then I see his stomach moving up and down or a twitch of his hand move...

For the past week, I have felt like I'm here but yet in lalaland...if that makes any sense...I know it plays on the back of my mind and being on FB keeps me distracted while he is sleeping...crocheting or reading would just put me to sleep, so I find the games distract me from thinking about it til he wakes or needs me...

I want to do an updated picture but not sure if I feel comfortable taking one with him so frail and how he would feel...he needs a hair cut again and his beard shaved...he says he's not up to it...

The hardest part is keeping it together especially when he keeps telling me he loves me and it almost sounds like he's fighting back the tears when he says it...which I have to be strong for him and the girls as he says "suck it up or pull your boot straps up and go on".

I'm not even sure he is going to be up to going for blood work on Tuesday, September 29th and then the CT of the chest/abdomen/kidneys the next day Wednesday, September 30th...that will take two hours as he has to drink that white chalky stuff or contrast as they call it...

With the passing of Patrick Swayze...here is URL http://www.dailymail.co.uk/tvshowbiz/article-1213530/Patrick-Swayze-loses-cancer-battle-57.html... to see pictures of him and the one I refer to in the wheel chair...it was sad and seeing the photo of him being wheeled out from the hospital a couple weeks before...he looks so frail...Tim is getting to look like that...with his eyes it looks like they're sad and trying to tell me he's not ready yet...

He is getting to where he doesn't feel like company but he won't turn them away so he puts on a face for them...like yesterday it was quiet for us and I ran to get the newspaper and around 3:30 p.m. a coffee bud came by and Tim saw the truck through the window and told me..."I wished he hadn't come over, I am not up to it"...but he put on his face and chatted with him as much as possible like his old self...;)

Even Jack was acting odd today...not eating in the morning like always...he is always begging for his food...twirling in a circle to let me know it's time to eat...lol...then laying on the bathroom rug while I am getting ready and he has never done that...it's always in his bed by the nightstand when I get cleaned up...

Oh, I did get a battery ordered for his cell phone and I am hoping it will be here on Monday...his cell phone is his life line to the outside world...like the Internet is for me...but those calls are even better...:D

Well, I guess I will get off here and wish everyone health, happ:Dness, and prayers for whatever your needs are...luv with all your heart, be safe and have a good weekend...much luv to all :))

Nephrologist...

Yes, poo pe' our arms are surrounding you and keeping you safe in our hearts...with lotttttssss of luv....

I saw the nephrologist (kidney specialist) this morning...according to my blood work one of the test is showing some small changes in my kidney functions...the family doctor wants to nip it in the bud by stopping or slowing it down as much as possible...but nothing to worry about yet...as most patients don't have to do dialysis even when their functions are at 5.2 and mine are at 1.42 right now...

Let's see the kidney doctor asked if anything different going on with me that I noticed and I said no as my kidney function test showed a drop in June to two weeks ago from 50% down to 38%...I have lost some weight...I made adjustment in insulin to lesser amount and changes in some meds if not drop 3 per family doctor...I have been doing good without them...probably due to the weight drop too...the K doc kept asking about calcium intake and I said just in multivitamin and said my cholesterol bit high this time...so will do blood work again in 3 months when I see him again and see if anything went back to normal before putting me on cholesterol meds...ugghhh...there goes prescription part D and hitting that DONUT HOLE sooner again...anyway, I am also still anemic so I am to take a different iron supplement with vitamin C together for better absorbent on an empty stomach...I'm already doing both but not together or on an empty stomach...but not that many mgs either...going from 54mgs to 325mg of ferrous fumarate (105mg elemental iron) instead of just iron pills...but if it comes to me needing dialysis down the road...I have to have antibodies built up in my system to prevent Hepatitis B...that is a series of 3 shots...TODAY...booster Oct 9th and last booster March 9, 2010...then 2 months later do a blood test to see if the antibodies have built up if not, then I have to do the series of 3 shots again...

I don't feel any different except better than I have felt in a number of years...a bit tired and I see why now...anemic but...lol...my lateness prolly doesn't help either at times...but too much sleep and I sometimes feel worse...I do better on 5-6 hours not 8-9 hours...although my body does need it with the sarcoidosis as it's one of the symptoms...tires out easily especially if you feel good and then you have a tendency to over do things...lol...I'm good for that one...:D

As for Tim, not much change...still holding his own with the right combination of the compazine and the stronger pain med...but he still refuses the full dose of 20-30mgs...he just went from 15mg to 17.5mgs and outside of being awake for company and meals, bathroom, meds...he now sleeps all the time...I know company he enjoys and he puts on the face...but like he said this morning he hoped no one called or came by...that was odd to hear that out of him...he has only lost a couple of meals since we got on this combination and eating like a bird about every 3 hours...

We did get a call from the nurse that she is working on his Sutent with the new insurance medicare parts A B & D...and medigap...well, we haven't even gotten that card on that one yet...anyway, Kristi has done as much as she can until I call the mail script pharmacy and tell them our insurance has changed and to try and process a refill with the new insurance but not to send...contact kristi so that she can further process to get us help to pay little or nothing for the Sutent or he will stop taking for his next round due on October 22nd...

Outside of all this, we are taking one day at a time and holding our own...loving each other, saying prayers for all far and wide and all our girls...others and yes, strangers too...near, far and wide...whether daughters, nieces, friends, there's quite a few of you out there and you'll know who you are...our prayers go out to everyone....;)

Oh, a quick note...Tim and I hope a lit'l birdie's foot is healed and doing well and not too over worked in several states...:*) I sure hope I remembered everything...have a good rest of the week...lol...half over uhhhh....

Small meals...

Small meals every few hours is what seems to be working so far so that he doesn't get sick or have dry heaves...also made some Gatorade...threatened him that I was going to get pedialyte...lol...but seriously, I also think that him taking the compazine every six hours is helping too...I was beginning to worry there and said if we can't keep nothing in you...you know you'll have to go to the hospital...no I'm not...

I did call the doctor on Monday and the nurse tried calling a stronger medicine in but pharmacy said they hadn't received it...so called again on Tuesday, the doctor's office said they did call it in so they called again...ahhhh...it got filled and I went and picked it up and used the Medicare prescription part D for the first time...so far it's ok...whenever we pick up meds for both of us they go toward our $295 deductible each...then drops down to like $4 on most of them...til we hit that DONUT HOLE...yikkkkkkessss....I'll hit it real soon...tehe...I know it not funn:D but got to get a laugh out of something these days...playing it by ear day to day on everything....:)

Anyway, he switched from 2-7.5's Lortabs to 1-7.5 and 1-10 so total pain med is 17.5mg and not 15mg...he's doesn't quite want to go to 20mg yet until he needs to...this combo he said seems to be working and he knows when he's hurting he can do as much as 30mg per doctor...but I feel he gets to that point it might be time to have hospice come in or I call them when I think we need them to come monitor him...anyway, however it all works...

Today has been about the same for his pain and he says he usually feels pretty good in the mornings but as the day progresses he feels worse...he says that's why he sleeps allot too...so he don't have to feel it...as far as his eating today, it is allot better...with the smaller meals or what seems more like a snack to me seems to be working...he ate about five times today...kept it down everytime...lol...if he started to cough I'd look at him and say, "Don't you dare get sick on me." ;))

With the holiday weekend coming up, we are looking forward to daughter coming home from college even tho she moved to Vegas and sharing apt with a friend...as for sister, we wish she was coming home too...so we know who we are speaking about without using names...the youngest is daughter and the eldest is sister...or our poo pes'...babycakes...sweeti...sweetpea...whatever pops into my head...lol...I know as the girls say, "mom, your funn:D or a dork." Also one of our nieces is going to try and come down too...

The weather brought allot of winds and dark skies...not sure it rained, I haven't looked yet but there was plenty of thunder and lightening...weather ahs been up and down here...wish it would make up it's mind and just kool off....well, guess that's all the news for now...ya'll take care be safe and don't take anything for granted...

Much luv and our prayers are with everyone....

Pain...

As much as I'm sorry to say, his pain seems to be increasing since his trip to the doctor on Thursday...I wished he had taken the offer to have something stronger but he refused...I have pain patches but they always seem to make him sick...percocet, he doesn't want to use again yet...makes him too out of it...he's allergic to morphine...it almost put him on his death bed in the beginning back in November 2008...

He is hurting he says in the left side where his kidney is and left shoulder/arm...I asked if he wanted me to sleep on couch so I am closer to hear him easier and he said no...just to set my alarm to be sure to get up...he wasn't sure what time he would get up...

He was okay long enough for me to go to store to pick up prescriptions and a few groceries tonight but the pharmacy was already closed half hour before and when I got done and leaving I didn't see her but she hollered at me-Lar...we chatted a few minutes and she is coming by in the morning with ma to see how he is doing...I said don't expect much as he hasn't been feeling too good last few days...he got sick again when Red was here visiting yesterday eve...

I know I'm probably all over the wall bouncing from one thing to another but I am putting down as it comes into my head...my apologies...I just...I'm afraid this might be the down side coming on...I hope not...I don't know what else to say...I will be posting probably a bit more often...

Prayers are needed for his pain to lessen and for me to have strength to be strong for him...our prayers as well go out to everyone who is having health issues, personal issues or what is going on in your life...take care be safe and much luv to all...I am very glad I ran across that "Dancing with God"...

Spiritual...

Dancing With God

When I meditated on the word Guidance,
I kept seeing "dance" at the end of the word.
I remember reading that doing God's will is a lot like dancing.
When two people try to lead, nothing feels right.
The movement doesn't flow with the music,
and everything is quite uncomfortable and jerky.
When one person realizes that, and lets the other lead,
both bodies begin to flow with the music.
One gives gentle cues, perhaps with a nudge to the back
or by pressing Lightly in one direction or another.
It's as if two become one body, moving beautifully.
The dance takes surrender, willingness,
and attentiveness from one person
and gentle guidance and skill from the other.
My eyes drew back to the word Guidance.
When I saw "G": I thought of God, followed by "u" and "i".
"God, "u" and "i" dance."
God, you, and I dance.
As I lowered my head, I became willing to trust
that I would get guidance about my life.
Once again, I became willing to let God lead.

Submitted by: Nancy Schiener

Docs today....

Hello...As usual the trip is always hard on him and so he sleeps several hours after getting home...I hated to wake him for his meds at 3 pm...if I don't then he hurts more from taking late...

His blood pressure was good 123/73 and his weight is down to 163-a six pound loss in a month...labs were okay...doc ask how things were and Tim let him know and I had some input...he doesn't want to do the infusion anymore and doc said fine that he could always change his mind...tried talking to him on way home about it but we would go with what he is feeling...just reminding him we may not be able to afford after this month as not sure how the Medicare and medigap insurance is going to work for him in paying...talked about tired, no energy...his eating, said how his pain in low back bothering him and doc suggested increasing his pain meds...Tim said no not yet...doc offered hospice so he wouldn't have to make the trips to Georgetown and the home nurse could dispense his meds to him...Tim said no again...he said he is bound and determined he's going to be here for his daughter's graduation from college...I don't think he stopped to realize...that is 3 semesters of school yet and then graduation for her Bachelors Degree in Elementary Education...he's trying to keep uplifted but it seems to get harder for him and yes, it does good for him to see family and friends but he did admit to doc he does put up a front so they don't worry...anyway...

He is scheduled again to see the doctor October 9th but before hand he is getting labs done on September 29th and then next day have CT of chest, abdomen, pelvic area and luckily we can have that one done here at Mesa View...then on October 2nd we'll go to Georgetown for the four hour process of nuclear shot, wait and then have whole body bone scan done...like Tim said seems like we just had that all done, it was just back on July 17th when it was done...not sure again what the insurances will pay...sure hope it covers everything cuz there isn't any money left out of budget to cover paying anything else...sure can't squeeze blood out of a turnip...lol...

I had went to doc last week to get blood work and new prescriptions for me...there were a lot of highs and lows but nothing too much to be concerned about yet...doc wants to nip in bud before it gets too far but there has been tiny increases in one of the tests showing something going on with my kidneys...he has referred me to a neuphrologist-kidney specialist...I have appointment to get labs done in morning which take two weeks to get results and then after my appointment with another doctor about changing one of my meds or several cuz the way I have been feeling but also how my blood pressure readings have been low...too low for me...then after see him, I go back over to hospital to get a Renal Ultrasound (kidney) with a full bladder...ugggh...I have to drink at least 32-40 oz. water hour before and hold during ultrasound....so I am going to have a busy day tomorrow...my appointment with neuphrologist is September 9th...I do hope I have that letter in my hand from cobra insurance next week so I can get my medigap insurance through United American...for underage...lol...

So, life has been busy this week and HOT again...suppose to kool down....phewwwww just saw weather on news NOT kooling down yet-uggghhh...I hope the weather isn't going to be a roller coaster of ups and downs til it finally kools off....anyway...

My prayers are with everyone and with it being a TGIF...whoo hoo...I hope you all have a gr8 weekend...take care be safe and much luv to elf...eryone....:D

Month now...

Hi everyone...yes, it's been a month...there really hasn't been a whole lot to tell...on his last doctor's visit a month ago the doctor said his six month tests were similar but even then Tim has said and still is saying, "I don't care what the doctor says but I feel there are changes going on in me."

These past couple of weeks and this going into the third week...I can see tiny changes...more sleeping, harder to eat, no energy, sometimes loosing his food...he has finally backed off on how much he eats so he doesn't loose his food...going for coffee is harder too as he wears out real easily and then sleeps pretty much the rest of the day...he eats mostly fruit in morning with his meds and then has like a bowl of soup, a few crackers and a couple slices cheese for lunch and then I am always asking what sounds good to him for dinner...based on that I fix what he thinks he can eat and I go from there on what to fix for me...if not the same...Sundays is a day he likes to try some roast from crockpot with onions, tators and carrots...he still is careful about how much he eats even if he still feels hungry...main staple is fruit cups, soup, something for dinner and maybe jello...oh, he is back to using the compazine if any nausea kicks up...

He was suppose to get his infusion monthly but because of the way he has been feeling, I cancelled the appointment last week until we see doctor tomorrow...he got his blood work done on Tuesday for doctor...

Now as for insurance, after about a month and half of searching and calling...I have us both signed up for prescription part D...one so we don't get penalized which starts September 1st...I got him signed up for a medigap insurance after medicare to help pay what medicare doesn't...but for me in the State of Nevada if you are under 65 on disability there is no coverage except with United American and another one called Liberty something...but I have to have in my hand a "Certificate of Credible Insurance Coverage Letter" before I can even apply for medigap insurance for underage...hahahaha...isn't that a KICK...assuming I will be approved and you are suppose to be with that letter no matter what your health if and I say "IF" you do within 63 days of that certificate...so I am waiting for that letter as Tim had me type one to send to the cobra insurance stating his Medicare kicks in on September 1st...daughter is waiting for a copy so she get her insurance picked out...

We are hoping with the insurance premiums and deductibles on medicines and then making it until the donut hole they call in prescription part D that we can make it through til the end of the year without pulling what little bit there is left in savings...not sure if we would even qualify for a mortgage modification to lower the house payments at least until he passes as I don't want to move him...it would be too hard...when that time comes I know I will have to sell the house which is sad...I won't give up my dog either...lol...

Well, I have to get off here and get some sleep for in the morning...you all take care and our prayers are with everyone...near or far...hugs and kisses to all and don't take things for granted...God Bless all....<3

It weird both Tim and Jack seem to be gasping off and on for their breath...must be the way they are breathing in their sleep...good night :)

Insurance news....:(

Insurance news...not so good...we made calls this morning and found out what we were suspecting...after August 31st he will no longer have cobra insurance for any of us...we will have to send a letter in writing to the insurance that he has medicare that becomes effective September 1st and to take us off...

In the mean time, I started last week checking out medicare part D and this is what brought the question of whether we will still have insurance and we verified that for sure...now after this morning I started doing more research on medicare part D and for me alone to pay the so called deductible/out of pocket expense my meds will run close to $1000 a month then after that is met the cost will drop down to about $291 a month then I hit that donut hole and it goes back up to about $1000 again til that amount is met and then drops way down to like $91 a month...we can't afford that...when trying to research his...nothing came up...that was even more frustrating...wondering what we are going to do...we can't afford a medigap/supplemental insurance either which comes after medicare to cover the balance of any bills...so Tim says we better hope like heck neither one of us gets put in the hospital...not sure how we will pay for hospice when the time comes for him either...

I haven't given up hope of researching...altho sometimes it's overwhelming for me in trying to handle it all and do the research/calls for find out things...thanks to my mom for listening and giving me some advice, thanks to News 3 who said anyone needing medicine help to go to their website and check out Nevada Drug Card...any Nevadan can apply no questions etc. just put your name and email address I believe and print off your prescription card and use it at participating pharmacies which happens to be Walgreens...which with further research on the drugs he and I use...now get this his sutent would be more through this program ($7935.23 month) than through cobra ($7484.01 copay $20) he won't get that after August 31st...for the three other meds that is 170.55 month and these are estimations....mine would run all but insulin and needles...433.50 a big difference....so based on your medicines it is a big savings better than partD...I have to check into part B medicare I think through Liberty???? supplies some lungs medicines and diabetic meds/supplies and they bill medicare....have to wait for ad to come up on TV again...can't find info on internet...keep coming up with wrong site....

Quote unquote..."he says this is what we'll do to stay in house til market better to drop all his meds and worry bout my meds"...I agreed to it but I am still going to research and get him the help for September on...maybe I'm being selfish but I want him around a weeee bit longer...after he's gone there is no way I can stay in the house as I couldn't afford it...I would have to sell and hope that the market was better to get our escrow out of it as much as possible...or like he said we just walk away, take a loss and rent a place...

Now, my next option is to go through his cancer doctor and see if they can get us help...also me call American Cancer Society and see if they can help...thanks to a facebook friend...she gave me two websites to check into for medicine help for free or a little bit of nothing....

We couldn't even afford to convert is life insurance through work which he qualified for up to $107,000 but toooooo expensive and I kept going down to lower amounts til I got to $10,000 and that was still too expensive...

So all I can say is our American Dream is shot...things are just too expensive....we have no bills except usual monthly expenses mtg, power, water, telephone/internet etc...one for new a/c last April 2008...still have $4400 left on it...you can't afford things you drop them...then you start losing everything just to keep going...

Anyway, I am trying to find out what I can and get the help we need...just hard and overwhelming...our prayers go out to our niece who got a second opinion on surgery...the doctor won't even attempt to do surgery on her gall bladder til November and then it may still be risky with her on blood thinners for the blood clots she has...Tim was trying to uplift her today...

I just don't know what to say...daughter offering to give up her college which she has a year left and then one semester of teacher trainee and find full time job...NO what good would it do...NO...we couldn't and won't ask other daughter to move out here...she has a decent paying job where she's at right now with the economy the way it is...us move out there, NO...winters too cold and humidity too much for me....we stay here!!!!

Anyone has any other suggestions you can email me at happemom@mesquiteweb.com and I will gladly check into them...I also am going to check with the Senior Center here and see how they can help with info etc...
I guess I better get off here as 2 a.m. and I need up to run errands in the morning while fairly cool...we hit 114 today and no clouds as it's clearing up from last weeks cloudiness...

Our prayers are with everyone and take care be safe and much luv to u all....:D

Test Results...

To begin with I apologize for not posting sooner today...the tests results on the CT Abdomen and Bone Scan whole body were favorable...the kidney tumor is still shrunk, the liver tumors are not shrunk but stable...these are similar to February's tests...again a mixed bag on the bone scan as in February also...with the bones of his right hip/leg where fractured which has a long rod and screws put in hip and knee...there is still slight growth as well as his left arm (humerus) that he fractured back in September when the cancer was first found...as well as both shoulders...

The doctor feels he is basically maintaining and as you all know there is no cure...just a slowing down of it...doc recommends he continues the "Sutent" as he is maintaining on it and the infusion of Zometa which will help him from having any more fractures...I should say less chance of fractures...because the more the cancer eats at his bones the more vulnerable he is to breaks...the doctor did ask if he is able to walk...yeah to some degree with the help of his walker, otherwise he's in the motor wheelchair...Tim and I were discussing this on the way home and he was actually surprised by that question as the doctor was surprised he is able to even put any weight on his legs...

The next concern is the quality of life...he can tell there are changes going on because his quality of life isn't where it should be...each day is a struggle for him...to deal with not being able to do anything...he can't sit for long, not able to go in yard/garage and tinker...his appetite varies from meal to meal let alone day to day...it's hard to sometimes come up with something he can or wants to eat or able to eat...I finally got him back on oatmeal for breakfast but this morning he only had a few bites...didn't feel like eating....just like tonight it was very simple but it hit the spot for him in small amounts...hash browns and scrambled eggs with melted cheese...like the way daughter fixes hers....:D He can't even enjoy a cup of coffee anymore...it doesn't set well with him...he's tried couple times going out for coffee with the guys this past 2 weeks since April 23rd fracture and hospitalization for surgery...he was so wore out and hurting...he is dropping weight again...down to 169...

His infusion of Zometa is tomorrow morning at 9 a.m. which is to be done every 4 weeks...and it'll only take bout 30 minutes after paperwork and setup...he doesn't need potassium this time so it won't be a 2 days process as potassium has to be given slowly over 4-6 hours....

Schedules and appointments are already setup for next month...before we possibly lose cobra in September because his medicare will kick in but also we can't afford even the 35% insurance premiums (instead of 100% originally) in September even if he didn't have medicare starting...so doctor said when he came in after September we would stop the Sutent and re-evaluate and make a decision then...what choices we have because we couldn't afford full price on Sutent...$7500 or the 20% $1875...as well as the infusion...it would be a matter of a quality of life and being comfortable...

I don't know what else to say...we continue to take one hour, one day at a time...trying to keep him comfortable, he's lost interest in a lot of things...movies, reading, interests isn't into learning the Internet...let alone the just tinkering on the cp...

I guess I better get off here...have to be up in five hours to get ready and take him to get the infusion by 9 a.m.
and good thing it wont take long...even the short jaunt to the hospital tomorrow will have him wore out and he'll probably sleep most the morning after we get back...

You all take care and have a good day tomorrow...our prayers go out to all near and far with each set of problems, issues, dilemmas and every where I look, read, hear....everyone has something happening/going on...our prayers especially go out to the Hughes family with their young man missing since July 13th...he is a distant cousin to our niece...May you all be blessed and be safe...love one another dearly...

Good night...Wow, I hear whale cries...tehe...that's just background music and ocean sounds....:)

Yeaaaa...

my email up and running again...about 99% of spam mail gone...whooo hooo

:D

Email...

I forgot to make a notation bout my email...my ISP was making some changes to those customers who are mail.mesquiteweb users Thursday night...I kept getting this pop up box so Friday after getting home from Georgetown...I called and got it corrected...or so I thought but when I kept checking my emails I wasn't getting anything so just assumed the filters on their equipment must be really filtering out all the spam mail...tehe...finally had daughter send me an email on Saturday and after an hour still hadn't received it...

I called my ISP again and in the mean time went online to see what their website had to say and followed the directions and everything okay...ISP finally got on phone and run all the diagnostics and did a test email and he also agreed I didn't and wasn't getting my email...that they are being held up in the system...unfortunately, the admin guy doesn't work weekends so it would have to wait til Monday to get it fixed...apologies accepted I fully understand...

So if you can hold on sending any emails til after Monday and I can shoot an email to everyone on Tuesday that all is fixed...yeah.....I hope and thanks :D

Results soon...

Hi Elf...eryone...this is to bring you'll up-to-date on Tim...he's been holding his own with some good days and some not so hot...the usual pain and trying to find what's going to work for him...we are finding out that pain patches just isn't his thing...the patches seem to make him feel sicker instead of helping take the pain away...

He's made an attempt to go for coffee twice now and always comes home hurting more than when he left and then sleeps all day...but he says it was worth it cause he got out...of course, the guys still call and stop by to check on him...Red who had hip surgery is coming along pretty good and has stopped by a couple times in last couple of weeks...Larraine still brings ma on Sundays when she doesn't have family in town...

We are now getting our super hot weather...I have made an attempt to be out only when need be and try to do in early mornings or after dark...hahaha...monsoon season doesn't seem to have hit us just yet...but last night it was all around us thunder and lightening and today cloudy but it is keeping most the heat out...at least this morning it did...it is sunn:D now...so it's gonna be another day of 116 here...

Now, for his six month tests...daughter came up to help out Friday, July 17th as we had to be in Georgetown all day pretty much to do them...up at 4 a.m. out of here at 6 a.m. to be there at 8 a.m. for his nuke shot and surprisingly enuff they took him in after three hours instead of four hours for the whole body bone scan and not sure what to say on it...he still lit up like a green Christmas tree with some areas brighter than others due to the tumors, so not sure if change or improvement or the same as in March...but ohhhhh, that sitting in the wheel chair was getting to him....then because he couldn't have anything to eat or drink six hours prior to the CT of the abdomen except clear liquids...he had to drink this chalky berry drink every 20 minutes over a two hour period and then they took him back to scan and then inject contrast and scan again...hopefully, the kidney is still shrunk and liver tumors stable if not shrunk...we finally got home about 2:30 p.m. and crashed for a few hours...he slept longer since his hip/leg was really hurting even with the pain meds by the time we got home...by bedtime he said it had pretty well eased up and feeling his self as much as can be...

We will be going to see the doctor on Wednesday July 22nd to get the results about 11:30 a.m. so I will post that evening what the outcome is...we are not sure if he will have another infusion the next day at the local hospital...a lot will depend on if the doctor recommends it again and also if his sutent will be continued or be changed to another cancer medicine....

Our prayers still go out to everyone in need near and far and prayers for Tim are still requested and of course we take one day at a time and try to make the most of them...Hope all is having a good summer and not getting too burnt and hot from the weather...tehe...take care, be safe and our thoughts are with everyone....:D

Wild Day....So sorry my apologies to everyone...

Well to start off with, Tim is holding his own...still suffering pain in his fractured leg due to the rod and screws - could be a combination of things: such as the healing process, the weather and maybe the infusion again...still not eating much at times but we are working on that...he's worried bout money stretching out to cover the regular bills let alone the insurance premiums every month...then supposedly I won't be covered by supplemental health insurance as secondary to medicare cuz I'm not old enuff...brb dog needs out :D
So that means my pre-exiting condition is or will never be covered by any insurance that will pick me up if at all...somehow that doesn't sound right...will have to check it out...

Otherwise everything has been going pretty good up til yesterday morning when our son-in-law called and I talked with him a few minutes and then all of a sudden I got lightheaded so I bent over to help control it...threw the phone at Tim and said to talk with Gary...I tried standing up and the feeling still came over me and I'd try sitting but couldn't sit straight up, I was bending at the waist again...kind of in a panic but talked myself down as much as possible...

Tam was in Vegas and I said not to call her to just call 911-waiting for her would take too long...he couldn't drive nor could I the shape I was in...so he called a friend who just had hip surgery few weeks back and might add is doing super good in healing...Lori came over and Red came with his wife. I had to walk out stooped over afraid that feeling would come over me again...the last time I went thru something like this was in 2000 when I had a rapid heart beat before taking Tamra to school and thought I was going to pass out...I thought that was scary but think this was worse because my blood sugars were good and blood pressure normal actually better than good...my words weren't slurred and I could raise my arms above my head and talk at the same time so figured not stroke...but still felt like I was going to pass out every time I tried to straighten up...

The ER was trying to rule out everything...CT brain for stroke, chest x-ray (not sure the reason for that or that I remember what they told me), blood work make sure chemicals were in balance...I did have an IV drip of potassium and magnesium as they both were low...so it's come down to inner ear problem...they gave me antivert to help but because I started to get soooooo antsy like I was ready to climb the walls and scream they gave me benadryl to help calm me...something in all of this started out making me sound like I was on a happ:D pill or been drinking...then all of a sudden I'm not sure what to say...I remember little bits and pieces but that I couldn't handle it!!!!!!...I can't stand to be soooo tired and yet feel antsy that I climb the walls...maybe my RLS (restless leg syndrome) added to it to...I don't know...I DO APOLOGIZE to everyone if I said or done anything out of line...like Tim and Tamra were telling me, they have never seen me like that before and even Lori said what a BIG transformation in my character...she was even worried for me...I would say I am allergic to something or combo of things set it off...

I don't even remember eating but there was something about having some acai juice and mixing magnesium powder in it and pouring it over bacon and trying to drink it off the paper plate...I know it wasn't funn:D at the time but to hear it now it sounds funn:D...sorry. I am soooooo sorry to my husband and especially to our daughter Tamra when she was only trying to help...I guess after trying the couch and not working I went into the bedroom and went to bed...because of her dad she came in woke me at 8:30pm and I think we ate Arby's so if I don't have any of this totally right she can correct me...I believe I was up for awhile not sure if I got in myspace or facebook last night...if I did I hope I was good with everyone...come to think of it I was on facebook and finally decided it was time to go to bed when my head hit the desk while dozing...lol...omg, I was a total mess last two days...I never want to go thru that again...whatever brought it on...then to have my character totally change...as today progressed on and took more naps and got the benadryl out of me and felt I had my faculties back I started feeling more myself...but I am continuing with the earplug in my left ear and using the travel sickness pill every 6 hours as needed when I feel that feeling starting to come over me again...so far its been pretty steady every six hours too...the hospital even called today to see how I was doing and to make sure I was taking the travel sickness pill...which I did after more of the benadryl wore off...

Right now I'm not sure whats going on and I just want to bawl...it just seems one thing right after the other and I'm strong and optimistic but enough...to see him today and this evening has me concerned...he says he's alright but his body language is saying otherwise...I think I really had him worried and still do...I don't think or I should say he doesn't want to be left alone again...by losing another wife...in death...that's why if anyone was to go it has to be him first not me...in a lot of ways I feel I'm stronger than him but yet he is strong-look what he has already gone through...but even that can be more than enough for one man...there was a question posed just recently asking where I thought I would be in 10 years time...I honestly answered "Living with one of our daughters"...oh, I don't want to be a burdened to them...

Well, he got his meds at 11pm with his magnesium drink and hopefully he'll rest peacefully knowing I am doing better...I think I will sleep on the couch tonight and make sure he does okay through the night after all that has gone on last couple of days...Tam will be home tomorrow as she will be taking me to my doctor's appointment first thing MOnday morning at 8am...so I will keep all posted...again my apologies to everyone and you all have a happ:D safe Sunday...good night...:D

Too long in updates...

Too long in giving you all updates and my apologies...it has been a long week and next month will be even longer and harder on one particular day July 17th when we have to be in Georgetown for 8 hours plus the drive time to and from....

Tam's fiance Shaun is having problems with his back again...docs, x-rays, MRI's...now off 5 days til results come back...depending on results either surgery or steroids shots...he will be in our prayers as well...his dad Ken is doing really good...

But to the updates...our niece who is having clot issues is still off work on short term disability and went in for a follow-up and found out why she is having so much pain...gall bladder...she is very high risk for surgery...her own doctor told her no doctors would touch her because her survival rate would be...doc couldn't even give her a 1% survival rate...she could die on the table...she has opted out and on heavy pain meds...doctor said she doesn't need her gall bladder, to let it die off and hopefully get through the pain with medication...we really feel for her and have her in our prayers daily...

He had labs done on Monday 8th at the hospital here in town and then on Wednesday 10th, we went to Georgetown and saw his oncologist...he was a bit low in phosphorus and slightly anemic...we told doctor about the infusion of zometa last month and how much pain it caused him and a bit of nausea and coldness he had for about a week...doctor recommended he try it again and if still the same reaction to stop getting the infusion...but while he was getting the infusion to add the phosphorus to it...to continue on the "Sutent"...so when we got home I ordered the last refill of "Sutent" and to be delivered on Tuesday by FedEx...got a new script for his lortab and a long acting pain patch to help him cut back on the pain pills...the patch last for 3 days at 25mg fentanyl if he needs stronger dose then go to two patches...hopefully this one won't make him sick like the morphine pain patches did...he's finding out he is becoming more sensitive to other medications...my mom is the same way...but then all you have to do is listen to your body and it''ll let you know if the medication is right or wrong for you...then on Thursday 11th, we went to the hospital here and he got set up for the infusion for 2 hours we were told...ahhhhh....what?...the doctor decided to add potassium to the infusion and it has to go in slowly otherwise it would affect his heart...see you need potassium for your heart to function properly among other chemicals...so instead of 30 minutes it was 2 hours...uhhhummmm...try 3 hours...along with zometa...so we opted as you can tell for half the potassium on Thursday and to come back Friday morning for the other 20mg of potassium in an IV drip or infusion...it was only 2 hours....yeaaaaaaaaaa :D...

We stopped to get lunch and check the mail...ate lunch...he took nap...I washed clothes, put my Taco soup in crock pot for four hours and baked a blackberry pie...ohhhhhh, that was soooooo good....you know it was good enuff to use as a blackberry jam too...I can use the same recipe for any type of berry pie...I have never made a berry pie...usually apple, peach, cherry and of course good ole' pumpkin yummmm...tehe...never thought to make a berry pie...then Smith's last year in season had them at the store and I bought one...oh, it was good and have been looking for the pies again this year...nothing yet...but a friend Tony gave me the recipe and so simple...I tyvm....:)

We got next months appointments scheduled...monthly labs July 15th here at hospital then the CT of abdomen and nuclear Bone Scan (where he lights up like a Christmas Tree-why you say?...because on the monitor he lights up green...tehe...a lit'l humor there) in Georgetown...then back on Wednesday 22nd to see oncologist for the results to see it the "Sutent" is continuing to slow down or stabilize the cancer cells...last report tumor shrunk some in the kidney and stabilized the tumor in the liver but a mixed bag that the cancer was still spreading in the bones...doctor is hoping for better results this time on the bones...otherwise, doctor will be changing his meds for treating...I was reading there is a new one out for the kidneys but not sure what doctor's thoughts are on it...we'll wait and see next month...so we have another breather for another three weeks...

I am holding my own and using my down time to relax by visiting and chatting with all my new friends and farming tehe...FarmTown...whoooo hooooo...talk about diversity of ppl...from Belgium, England, Philippines, Canada, Australia, Chile, Scotland, Spain (only Tatakoa showed me a translator to use so we can talk and maybe I'll learn some Spanish too-that was fun) UT, IN, NC, MO, AK, LA, CA, GA and many more, oh and of course good ole' NV...:D...my apologies for not getting on today yet...needed some sleeping in time and blogging as well...I have them not as often but get hit with it still...it's been one of them days where I'm fighting back the tears off and on today...sorry :( but I be ok...I always am...:)~ that's strawberries to you...tehe...

Our weather has been pretty mild except for the winds...had a few days of over 100 degrees but it'll hit with a vengeance soon enough...hopefully, we won't get hit with any 120's...lol...so I think I have covered all the basis...oh, maybe not...our youngest on Monday will be moving to Vegas to share a place with some friends as it will be closer to her job and college coming up again in September...but she will jaunt home to check on us...told her not to fret she has to do it one of these days anyway...now is just as good as a later time...she's been somewhat of a caretaker LONG enuff for her mom when he was working and now her dad...she needs to get her life started...:D lvu babes...

I hope this finds elf...eryone having a happ:D and fun weekend being safe careful and very much loved and surrounded by family and friends...prayers are with you all...:D

Doctor today....

He saw the doctor today actually this late morning...x-rays are looking good...shows this big Ole rod in his leg to help hold together while his leg heals and especially round the tumor area and the cloudiness in the x-ray is doing what it suppose to-healing...but the long rod is there if it was ever to change down the road...or if it wasn't healing properly this past five weeks...

The doctor also said he could go off his blood thinners (coumadin) and it should be out of his system in about 3-4 days and then if he needs it go back to using naproxen with his lortabs...naproxen also acts as a form of aspirin too...

He is suppose to start using his walker/cane/crutches - which ever suits him and put weight on his leg and over time more weight but to realize he can't go with any of those choices for the rest of his life...hahaha...doctor said he was taking it well and upbeat...what else can you do but that and try to defy the odds...

We met a nice lady from church and she kept thinking she knew our daughter - she did and finally came over to say hi and well wishes...we her too...recovery from knee surgery...just so many people needing prayers...MaryAnn not sure what's going on in her life - saw pic of her strapping young man who graduated...others making decisions in their lives moving, school, etc...family members needing surgery and friends as well...I pray that our niece who hasn't been home long from the hospital with meds for fighting blood clots - right now is going through surgery for her gall bladder and she is soooo high risk....mom still having problems again with hands swelling and in pain from the gout...steroid therapy didn't work for long nor the other medication used...a friends father not needing heart surgery just stints and glad to hear he's feeling a lot better...Tim talked with him a few days ago...praying that my scrappers hubby is holding and continues doing good...just so many and knowing you can't get them all mentioned in here...so this goes out to all near and far, sick and healing, whatever your needs are, you're in our prayers...:*)

A happ:D note ...TO ALL THOSE FARM TOWN ADDICTS out there...LOL...be safe and have a good week to elf...eryone....boo

p.s. Belated Happ:D B-days to those I've missed and those coming up in June...happ:D b-day Jamie Wade...

Oh so long...

Oh, so long in blogging...there hasn't been much to tell...each day can be different from the other but not different...

The pain has lessened but not so if he sits too long then the rods (long and short) connecting together at hip give him more trouble...he found the right combination of pain med...but pharmacy says you can't take that much but yet all of his doctors say he can...so now his pain strength is right but the tylenol part is 175 mg less each time for taking it...so you know when in pain the bite (temperament) is stronger and when no pain you have a happ:D camper and is sunn:D all the way round...

Plus he still is unsure whether he wants to continue the infusion of Zometa...it has made his bones hurt that much more...especially in the areas of the tumors...so we will see come next month...actually on June 10Th...if he does another one or not...at $5313 a whack...thank goodness for the insurance...

We had been putting off going out to early vote for city council members and finally had to do it today...since Tuesday will be the actual election day and it's liable to be busy because many may have put it off like us...we got there and were the only ones voting until after leaving and some other voters started showing up...

I made a stop at the pharmacy to pick up the blood thinners enough to get him through for 10 days at dosage doctor wants him to take...seems to have leveled out and after seeing the doctor this coming Tuesday, we'll know more on how soon he can put weight on his leg and how long on the coumadin...a chance he may be going off of it after seeing the doctor...

I still set the alarm to make sure he has meds at 3 a.m. and then up again at 7 a.m....I have over slept a couple mornings this week...he intentionally let me sleep...may be good...somehow, it feels like it throws my day off...like today, Tamra home and it makes it feel like Saturday not Friday...

We heard today our niece needs more prayers...she had an appointment with doctor to see how she is doing but also complaining of discomfort...seems she has gall stones...don't know much else on the blood clots situation yet...the stints and meds assume are working...when it rains it pours...she was thinking about going back to work part-time...sounds like she would be pushing it...

I don't have much more to tell so with it being a Friday...yeaaaaaaaaaaa....I wish you all a safe and happ:D weekend...:D

Happenings...

Happenings since last posting is mixed...niece is holding her own so far and still at home...her sister got back home with her family in Georgetown...

My mom come to find out she has gout...yes, gout in her wrist/hands...it can show up in any joint area and be painful/swollen...the doctors have her on prednisone and tapering her off and then try non-steroid medicine to see if it continues to help...course the steroids spike her blood sugars so she has to be careful in what she eats...me too...

We have family members who had a surgery on her hand (broke and had 3 pins put in) and one needing surgery on his hand...our prayers will be with them both in speedy recovery and going through the surgery...

He's had his infusion of zometa Tuesday but not so sure he wants to continue with getting it each month...it has made him feel awful...now, his healed fractured arm is bother him to the point that tonight he has put the brace back on...he has even started throwing up thinking it was going to be a burp...he got surprised and good thing I was quick...:( so I'm trying to convince him he needs to eat a little something every few hours to make sure he as something on his stomach because the meds could be affecting him when he doesn't eat since having the infusion...he just has so many things going on and but also trying to find the right combination for the pain meds...this is why he may sleep alot so he doesn't have to feel the pain til it wakes him up...like I said a mixed bag of things going on...

I have to say I have been on facebook several times and don't particularly like it as well as myspace...but because of several people...I got back on to keep better in touch...but our youngest, Tam got me hooked in playing this game...ohhhhhhhhh, wow...I have hustled to get work to get where I'm at in the past five days...it is a destresser for me at late evening...I'm building my farm and enlarging it quite nicely...I do think so myself :D ...

Anyway, I have met and chatted with some nice people...one from NC and LA and even Chile...who has sent blessings for him...the more I talk to people, I am realizing how much we all have in common to a point...that this is a small world and we all are connected in some small way or another in diverse ways...just watching Patrick Swayze's story fighting cancer...how him and his wife feel which is what we have said and feel too...now with Farrah's story this past Saturday night on NBC...my prayers are with her and Ryan but feel from her status of watching it may not be long and she'll be in God's hands...it's what I'll be going through when his medicines quit working for him...like going to services of family/friends whom passed...reminds me of what I will have to go through...but positive side...he's a fighter and so am I and together we'll get through this until that time comes...

On the lighter side, I think...lol...I've said we've been having warm weather this past week of 100 degrees...ugggghhhh, it hit 106 today off back porch and that is in the shade....yeah....not/nor have I ever gotten used to this hot weather and I'm originally born and raised in Alaska for twenty-five years and now here since 1985....:D....

Well, elf...eryone I'm going to say good night and wish you all a good week and pray for all...be safe, someone helps you, pay it forward and then maybe we can have a ripple effect and in some way make some changes however small or large...much love to all :D

More prayers needed...

I have more news of others needing our prayers...my mom's left wrist/hand are swollen like her right thumb/hand was...pray all okay...makes me think she has a spider/s nesting somewhere...

I am requesting prayers for a dear friend who has had a lot going on in her life these last few years...good in tween it all...losing Joe few years ago who had heart surgery some years before...finding another love in her life :D...losing her mom just a couple months ago and now her dad Tyke (apologies if name spelled wrong) needing open heart surgery...the saying, "Will it ever end"...I have heard quite a bit here lately...:(

I don't know what is going on in others lives but our prayers are out there for all of you...somehow we all can be an inspiration to each other and for all...we can make a difference...my blogging may be helping someone go through their process of happenings...Patrick Swayze's special back in January...made me understand we aren't the only ones having the same feelings...a lot of what was said in his special...all I could do was "omg, that's what we both are feeling"...just get out there and talk and know someone does understand what's going on....if you are reading this in time and have a chance...watch Farrah's special tonight on NBC...my understanding is after you watch it you'll want to go hugs your own and cry a lot...

I heard someone say on TV...maybe it was Ryan's...forgive me if I don't remember all of the beginning..."It was something but it was easier to die"...not sure I agree with that...dying isn't easier...not when you see your loved one suffering at times, dealing with the pain but not wanting to be on too much pain meds...to trying to be a good caretaker as well as a spouse or whatever the relationship is...Patrick has it much easier as he has all his limbs to use still...whereas he has dealt with a fractured left arm and now a fractured leg/hip...hoping heals enuff for him to at least put some weight on with use of cane or walker later...wondering why he has to do exercises if there's a chance of him breaking/fracturing more bones....tried to explain that his muscle toning will help keep the bones strong as much as possible and also help with circulation...

He wants some sort of normalcy back...I am just so thankful for his friends who come over and have coffee here with him...to one special couple who have their health issues too, who have brought over homemade soup and bread last week and this week...omg talk about some mean soups...chicken noodles and now beef barley to die for...wow...I feel guilty cause they, like I said have health issues...hope his doctor's appointment today is encouraging on news for his knee/s...

So for all of you out there near and far, family/friends or strangers reading this..."May the White Light of the Holy Spirit" surround you in his loving arms and keep you safe and help you through your happenings...God Bless you all!!!!.......

Be safe and have a gr8t weekend...much luv to all :D

Good news...

Good news...our niece got released home yesterday but not back to work for awhile...she has to give time with meds and less stress...her body telling her to slow down...too much work can get ya in trouble...

Lates on him nobody understand that...lol...Latest on him...he had his appointment with cancer doctor on Monday...doc Joe placed orders for his infusion on Tuesday 12th at Mesa...after stat on blood work to be sure the dosage is right...doctor said due to him starting back on his sutent a couple of weeks later after hip/leg fracture and based on the mixed test results from end February on CT and bone scan...refresh mem...tumor shrunk in kidneys, tumor in liver stable but still spreading in bones...doc may change his med from sutent to another...he was wanting to do the infusion to have tried to prevent these pathological fractures from happening...so play by ear and see if next doc visit he changes or waits til after next set of Ct and bone scan done again...change med...

The trip to Georgetown always seems tiring for him and he slept most the day off and on...the home health nurse still comes in twice a week...checks his blood for the right dose on blood thinner...still don't have adjusted right...he was doing 2mg then went to 4 mg for 3 days but then his blood level for blood thinner was too high so went off of it 3 days...rechecked and back on 2 mgs but wee bit too long again...so, he's doing every other day of 2mg then 4mg then 2mg etc...his blood will be checked again on Friday...it may still get adjusted again...

It was an early morning yesterday...we got to the hospital and didn't have to wait long to register for labs stat...then go up to 2nd floor and nurse's station said it would be done in ICU...by the time we got there and nurse Diane set up his IV and let it slowly drip...she had results in and he was to be given the full dose of 4mg of zometa...he lay on the bed for comfortableness...his hip/leg still bothers him but FOR SURE not like on day of incident or for several days after surgery...once she started the drip of zometa it took right at 25 minutes and shortly after that Tam came in and we headed home...he did ask what the side effects were...feeling bit gaggy...got home and slept most morning...kept saying rest of day his bones hurt not like before but differently...especially in the areas of where the tumors are in his shoulders, leg/hip, previous fractured arm..."not sure what that zometa is doing but it sure is taking hold of those areas"...

He woke this morning freezing...put 2 xtra blankets on him...slept some more and woke feeling warm...but this afternoon he cold again...after getting hot so the zometa got to be working and maybe also in conjunction with the sutent...

He made comment that after he heals from fracture and weight bearing on leg/hip again...he is looking forward to getting out and having coffee with his buds...:D that sure sounds like his old self, a fighter like me...everyone that sees him says he looks good and wouldn't know he had cancer cuz it's not really visible...

It's good thing he/we didn't have anywhere to go today...another windy day with gusts...can't handle that wind with my lungs...well, guess go for now...have some time to myself while he sleeps/naps I either nap with him or relax being a farmer...lol...most of ya'll knoz what I talkin' bout...have a gr8t evening...bye all...

Updates...

Updates...my mom is doing well from form of bug bite on her thumb/hand and her iron levels are back up and she's back to one shot a month...

Our niece - last update this morning...she came through surgery just fine, still on oxygen as still hard to breathe...the doctors got the filters put in to help stop the clots...there is still the one headed for her heart and docs are keeping an eye on that...so with filters and meds they're hoping dissolve the clots, she now has a fighting chance...hopefully, the docs won't have to go in and open her heart up to try to retrieve that one...will keep all posted...

Today was mostly trying to catch up on sleep...lol...like anyone ever does...It got windy here so I didn't go anywhere, besides hitting 100 degrees again for the third day (at least off our back porch) let daughter get mail and paper when she got back from Vegas...headed back tomorrow morning for work then back home again tomorrow evening til Tuesday morning...

She has found a room to rent with some friends starting next month for the summer but mostly for college next fall...she had her experience with college dorming and that was enuff...lol...some student neighbors not having courtesy to keep their noise down...

Our prayers go out to all who are having services these few days and that they find comfort as time heals all...

Elf...eryone be safe this weekend and enjoy Sunday...

Full Moon...

Oh so many things happening in town, with friends, family...like some are saying "omg when is it going to end"...I kept saying it's the full moon...don't think so now...too much...

Different families around town hurt in accidents/illnesses/some out of stupidity for attention, some serious...some fatal...in ours - nephew passing-heart attack...my Tim - surgery to help hold his leg/hip together to have chance to heal from pathological fracture around the tumor area of his leg(xray looked liked cracked egg when you tap to break one open to fry)...niece - blood clots in lung, also showing in lower extremities - needing surgery to give her some kind of fighting chance by putting in filters to help stop them til meds have chance to help dissolve them all...there's one already moving towards her heart...no further word yet...needing a lot of prayers for her...As Tim said earlier today, it's happening to all our young and not the older ones...

Update...he took himself off the stronger pain meds Dr. Todd put him on Tuesday...he just didn't like the way it was making him feel odd and his chest bothering him...since he changed back to the lortabs this morning he feels a lot better...he said that would probably be one of the meds he would use later on when nothing else works and the cancer treatment isn't working anymore...he can't see why anyone would want to be on that stuff and be doped up all the time...I don't like that feeling either and nor do the girls...

He got started back on the "Sutent" today and his coumadin (blood will be check again on Monday to make sure of the right dosage)...his cancer appointment is on Monday late
morning...hopefully, he'll get that infusion to help manage his pain as well along with helping out in strengthening them bones up too...

One of his coffee buds...wife made homemade chicken noodle soup (even the noodles) and some fresh homemade bread and chocolate chips cookies yesterday and brought over for dinner...omg talk bout a mean chicken soup...WOW...still eaten' on it tonight...actually had some at lunch too...wasn't that much but not big eaters either so still have enuff for 2morrow...:D~

If you haven't picked up on it yet...when I'z tired I get rather silly...come up with these goofy comments...reason I say this is...he was taking a nap yesterday and sometimes during his sleep his hands get to movin' and making different jesters and suddenly out of the blue his right hand comes up and shows the peace sign...all I could do was say, "Peace brother"...cuz I was tired it struck me funn:D and all I could do was laugh silly....I'm alright it's the other guy that's not....tehe

Well guess will make this it for 2night and wish elf...eryone a TGIF day 2morrow...if in I don't gets to blog b4 Sunday all you moms out there have a super duper gr8t day...





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Apologies...

My apologies in loosing my right side widgets...was trying to change my background and thought I had everything saved before changing it...give me time and I'll have it all back on...

So while I'm on, I will bring elf...eryone up to date...:D...he saw Dr. Todd yesterday and got the staples removed and the post-op wounds are looking good...the doc has agreed that for now he can do the p.t. on his own...he's to return in four weeks and have x-rays to see how it's healing...the x-rays we got to look at yesterday were awesome...I mean in that you saw the rod and screws holding it all together and the fracture...just like in his arm...looks like playing tug of war and the rope would break in the middle...well the break was in the area of the tumor and looking at the x-rays the leg was pinned together pretty good as far as matching the the two sides together to hopefully heal itself...that's what they wanted to do with his arm and he said no...also his cancer hadn't been contained yet to keep it from spreading any further...with this break the docs had no choice but to go in and put the rod in his leg to help it heal as much as it can...

With both ortho and oncologist docs, they both agreed he can get started back on his "Sutent" which will be the 5th round but just 2 weeks late starting back on...don't know how this will affect the tests being done again at the end of June...may be postponed til middle of July...the tests referring to are the CT and whole body bone scan...which both tests take 2 and 4 hours due to the contrast he has to drink and then the nucleur shot for him to light up like a Christmas tree and this is all to see how the "Sutent" is stopping the progression of the cancer...we are now working at beating the odds again and pushing for that year...we get past that year then we'll push for that 2nd year :D...just like Patrick Swayze...he's beat the odds and putting up a fight...he's going into his 2nd year...recent fotos in the news showed he was almost skin/bone in the face :(...

A bit melancholy and not much to say...sorry....elf...eryone have a good day...:D

For each ONE of OUR girls...

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